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HR 6001

Veterans with ALS Reporting Act

119th Congress Introduced by Ken Calvert and 3 co-sponsors

The Veterans with ALS Reporting Act mandates a report on ALS incidence in veterans, proposing strategies to reduce cases and improve care and support for affected individuals.

Introduced in House
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Bill Summary · HR 6001

Summary of HR 6001: Veterans with ALS Reporting Act

Purpose and Intent

The Veterans with ALS Reporting Act (HR 6001) aims to address the growing concern of amyotrophic lateral sclerosis (ALS) among veterans. The bill mandates the Secretary of Veterans Affairs to compile and submit a comprehensive report to Congress on strategies to reduce the incidence and prevalence of ALS in the veteran population.

Key Provisions

The bill includes several critical components:

  1. Report Submission:

    • The Secretary of Veterans Affairs is required to submit a report to Congress within one year of the bill's enactment.
    • The report must assess the incidence and prevalence of ALS among veterans, as defined in section 101 of title 38, United States Code.

  2. Resource Assessment:

    • The report will detail the resources and support provided by the Centers for Disease Control and Prevention (CDC) and the Department of Veterans Affairs (VA) for veterans diagnosed with ALS.
    • It will identify any deficiencies in these resources and support systems.

  3. Risk Reduction Strategies:

    • The Secretary must propose strategies to develop and test risk reduction measures aimed at lowering ALS incidence among veterans.

  4. Clinical Trials Participation:

    • The report should outline a strategy for veterans receiving ALS care at VA clinics to participate in clinical trials and research sponsored by the VA.

  5. Legislative Recommendations:

    • The Secretary is tasked with providing recommendations for potential legislation to address challenges related to ALS among veterans.

  6. Tracking ALS Prevalence:

    • The Secretary will track ALS prevalence in veterans using the CDC's ALS registry and biorepository.

  7. Subsequent Reporting:

    • Updates to the initial report are required every three years after the first report submission, including ongoing prevalence data.

Affected Parties

The primary beneficiaries of this legislation are veterans diagnosed with ALS, as well as their families and caregivers. The bill also impacts healthcare providers within the VA and CDC, as they will be involved in the assessment and implementation of the proposed strategies.

Procedural Aspects

  • Introduced: November 10, 2025
  • Current Status: The bill has been referred to the House Committee on Veterans' Affairs for further consideration.

Conclusion

The Veterans with ALS Reporting Act seeks to enhance understanding and management of ALS among veterans through comprehensive reporting and strategic planning. By addressing the incidence and prevalence of this debilitating disease, the legislation aims to improve the quality of care and support for affected veterans.

Compiled from official sources — confirm details with the bill’s official record.

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