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Bill

SR 114

SPECIAL DAY/WEEK/MONTH: Designates the month of May as Prader-Willi Syndrome (PWS) Month in Louisiana.

2025 Regular Session Introduced by Franklin Foil

Louisiana designates May as Prader-Willi Syndrome Awareness Month to increase recognition and support for this rare genetic disorder.

Enrolled. Signed by the President of the Senate and sent to the Secretary of State by the Secretary of the Senate on 5/22/2025.
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Bill Summary · SR 114

Legislative bill overview

SR 114 designates May as Prader-Willi Syndrome (PWS) Month in Louisiana through a special resolution. This is a ceremonial measure that recognizes and raises awareness about PWS, a rare genetic disorder affecting approximately 1 in 15,000 births.

Why is this important

Designating awareness months helps focus public and medical attention on lesser-known conditions, potentially improving diagnosis rates and patient support. For PWS specifically, increased awareness can lead to earlier identification, better access to treatment resources, and community understanding of the challenges families face with this complex developmental and metabolic disorder.

Potential points of contention

  • Proliferation of awareness designations: Louisiana may have numerous designated months/weeks, raising questions about whether ceremonial resolutions effectively drive meaningful change or simply accumulate on the calendar
  • Limited practical impact: Special designations are symbolic gestures that don't allocate funding or mandate services, so tangible benefits depend on whether organizations independently increase PWS-related activities during May
  • Resource allocation concerns: Some may argue legislative time would be better spent on substantive healthcare or funding measures rather than ceremonial recognitions

Compiled from official sources — confirm details with the bill’s official record.

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