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SR 100

SPECIAL DAY/WEEK/MONTH: Designates May 2026, as Amyotrophic Lateral Sclerosis Awareness Month.

2026 Regular Session Introduced by Robert Allain

Louisiana designates May 2026 as ALS Awareness Month to raise public awareness, support timely access to therapies and assistive tech, and highlight ALS research and advocacy.

Enrolled. Signed by the President of the Senate and sent to the Secretary of State by the Secretary of the Senate on 4/30/2026.
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Bill Summary · SR 100

Summary: Senate Resolution 100 (SR 100), 2026 Session – Louisiana

Overview

  • Type: Senate Resolution
  • Sponsor: Senator Allain (Co-sponsor: Senator Robert Allain)
  • Jurisdiction: Louisiana
  • Session: 2026 Regular Session
  • Subject: Designates May 2026 as Amyotrophic Lateral Sclerosis (ALS) Awareness Month

Purpose and Intent

  • The resolution recognizes and designates May 2026 as ALS Awareness Month in the state of Louisiana.
  • It aims to raise public awareness about ALS (also known as Lou Gehrig’s disease), its impact on individuals and families, and the importance of advancing research, access to therapies, assistive technologies, and clinical trials.

Key Provisions

  • Recognition Statement: Declares May 2026 as ALS Awareness Month for purposes of awareness, education, and advocacy within Louisiana.
  • Educational Justification: The resolution provides context about ALS, including its degenerative nature, typical prognosis, and the impact on daily living (loss of mobility, speech, eating, and breathing capabilities).
  • Advocacy and Research Emphasis: Highlights the importance of access to new therapies, durable medical equipment, communication technologies, and clinical trials in improving quality of life for people with ALS.
  • Support Organization Mention: References The ALS Association as a leading nonprofit stakeholder in ALS research and support services, noting its global activity and funding contributions.
  • Action Toward Awareness: Directs that a copy of the resolution be transmitted to The ALS Association, to officialize and disseminate awareness efforts.

Who/What Is Affected

  • Primary Effect: Formal acknowledgment by the Louisiana Legislature of ALS Awareness Month in May 2026.
  • Target Beneficiaries (Implicit): People living with ALS, their families, caregivers, healthcare providers, researchers, and advocacy organizations (notably The ALS Association) through heightened public awareness and potential support for related programs.
  • No Fiscal or Regulatory Changes: The resolution does not create new budgets, statutory obligations, or regulatory requirements. It is a ceremonial and commemorative gesture.

Procedural/Timeline Aspects

  • Status: Introduced in the Senate in April 2026; read by title and placed on the Calendar for a second reading.
  • Next Steps: If adopted, the resolution would be transmitted to The ALS Association and publicized as part of ALS Awareness Month activities.
  • Effective Date: As a resolution, it becomes effective upon enactment (approval by the Legislature and signature by the governor if required for resolutions in Louisiana; typically, ceremonial resolutions do not require a signature to take effect but are formally adopted by the body).

Practical Implications

  • This resolution serves to:
    • Elevate awareness and public understanding of ALS.
    • Encourage support for ALS research and access to care and assistive technologies.
    • Align Louisiana with national and global efforts to highlight ALS during May.

If you’d like, I can provide a brief plain-language brief for distribution to constituents or a one-page infographic outline to accompany the bill’s passage.

Compiled from official sources — confirm details with the bill’s official record.

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