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SJR 36

SCARRING ALOPECIA AWARE. MO.

104th Regular Session Introduced by Adriane Johnson and 5 co-sponsors

Declares September 2025 as Scarring Alopecia Awareness Month in Illinois to boost awareness, education, and research, with no funding or new regulations.

Adopted Both Houses
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Bill Summary · SJR 36

Summary — SJR 36: “Scarring Alopecia Awareness Month”

Status: Adopted by both houses (Joint Resolution)
Introduced: January 22, 2025
Official designation: Declares September 2025 as “Scarring Alopecia Awareness Month” in the State of Illinois
Bill type: Senate Joint Resolution (SJR 36)

Purpose and intent

SJR 36 seeks to raise public awareness of scarring alopecia (cicatricial alopecia), a group of rare disorders that destroy hair follicles, replace them with scar tissue, and cause permanent hair loss. The resolution highlights the physical, emotional, and psychological impacts of the condition, the importance of early diagnosis and treatment, and the need to promote research, provider education, and support for affected individuals. The resolution designates September 2025 as Scarring Alopecia Awareness Month to encourage education, advocacy, and research efforts.

Key provisions

  • Officially declares September 2025 as “Scarring Alopecia Awareness Month” in Illinois.
  • Encourages public education about scarring alopecia, earlier diagnosis, access to specialized care, and support for patients and families.
  • Expresses support for organizations, researchers, healthcare providers, and patient advocates working to improve treatments and outcomes.
  • Does not appropriate funds, create regulatory changes, or establish new programs—primarily a symbolic/statewide recognition.

Who is affected

  • Primarily symbolic: residents of Illinois, patient and advocacy groups, healthcare providers, and researchers may use the designation to organize outreach, education, and fundraising activities.
  • No direct legal or fiscal obligations for state agencies or private parties are created by this resolution.

Legislative timeline and procedural history (selected)

  • 2025-01-22: Introduced in Senate; read first time; referred to Administration.
  • 2025-01-28: Public hearing held; reported favorably without amendments; committee report printed.
  • 2025-05-06 to 05-30: Filed in House, assigned to House Public Health, recommended and adopted by the House (May 30, 2025).
  • 2025-10-28: Assigned to Senate Public Health Committee; motions to suspend rules prevailed.
  • 2025-10-29: Public Health Committee recommended adoption (9–0–0).
  • 2025-10-30: Resolution adopted by both houses.
  • Sponsors/co-sponsors: Senate primary sponsors include Adriane Johnson and Stephanie A. Kifowit; House chief sponsor Rep. Stephanie A. Kifowit; alternate chief co-sponsors added include Reps. Camille Y. Lilly, Dave Severin, Debbie Meyers-Martin, Sue Scherer.

Impact and notes

  • SJR 36 is a formal, symbolic recognition intended to increase awareness, support patient advocacy, and encourage research and provider education about scarring alopecia.
  • It carries no funding or regulatory mandates. Its practical effects will depend on how public-health organizations, advocates, and state/local entities use the designation to coordinate events, education campaigns, or research initiatives.

Compiled from official sources — confirm details with the bill’s official record.

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