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Bill Summary · HJ 19

Summary — HJ 19: Resolution to provide for Frontotemporal Degeneration Awareness Week

Status: Joint resolution — Filed with Secretary of State (May 6, 2025)
Primary sponsor: Rep. James Reavis
Classification: General Joint Resolution (Health)

Purpose and intent

HJ 19 is a ceremonial joint resolution that establishes an observance to increase public awareness of frontotemporal degeneration (FTD), a group of progressive neurodegenerative disorders that affect behavior, personality, language and/or movement. The resolution’s intent is to promote education, reduce stigma, recognize those affected (patients and caregivers), and encourage state agencies, health care providers, community organizations, and the general public to participate in awareness activities.

Key provisions

  • Declares an official "Frontotemporal Degeneration Awareness Week" (the resolution text would specify the exact week or direct it to be observed annually).
  • Calls on state agencies, public institutions, health care providers, educators, and community groups to observe the week with appropriate activities such as public education, screenings, informational events, and distribution of resources about FTD.
  • Encourages citizens to learn about FTD, support affected individuals and caregivers, and promote early recognition and referral to appropriate medical and support services.
  • Does not create new regulatory requirements, appropriate funding, or modify existing statutory programs — it is a non-binding, commemorative resolution.

Who is affected

  • Individuals diagnosed with frontotemporal degeneration and their families and caregivers (heightened public awareness and potential for better support/referrals).
  • State and local health agencies, medical providers, hospitals, and community health organizations (encouraged to participate in outreach and education).
  • Advocacy groups and researchers may benefit indirectly through increased public attention and potential partnerships.

Procedural and timeline notes

Significant actions:
- Drafting began Dec 2024 — Feb 2025 (LC drafting history).
- Introduced and referred to committee in late Jan–Feb 2025; hearings and committee concurrence in both chambers (House Human Services Committee; Senate State Administration).
- Passed both chambers (House 3rd Reading passed 03/28/2025; Senate concurrence 04/22/2025).
- Enrolled and signed: Speaker (05/02/2025), President (05/06/2025).
- Filed with Secretary of State: 05/06/2025 — at this point the resolution has been officially recorded.

Related bill/draft: LC 2562 (the current measure replaces this earlier draft).

Impact

HJ 19 is primarily symbolic and educational. It raises visibility of FTD across the state, may improve public knowledge and encourage earlier clinical attention, and can support advocacy and community activities. It does not appropriate funds or impose new legal obligations.

Compiled from official sources — confirm details with the bill’s official record.

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