Bill
ACR 33
Overview: ACR 33, Relative to Rare Disease Day, Chaptered by Secretary of State - Res. Chapter 25, Statutes of 2025, Introduced: February 14, 2025Purpose and Intent: The main purpo
Overview: ACR 33, Relative to Rare Disease Day, Chaptered by Secretary of State - Res. Chapter 25, Statutes of 2025, Introduced: February 14, 2025
Purpose and Intent: The main purpose of this concurrent resolution is to recognize and raise awareness about Rare Disease Day, an annual event observed on the last day of February to highlight the unique challenges and experiences of individuals and families affected by rare diseases.
Key Provisions:
- Officially designates the last day of February as Rare Disease Day in the state
- Encourages state agencies, healthcare providers, and community organizations to participate in educational and outreach activities to promote awareness and understanding of rare diseases
- Calls on the state legislature to support policies and initiatives that improve access to care, research, and resources for individuals living with rare diseases
Affected Parties and Impacts:
- Individuals and families affected by rare diseases, who may benefit from increased public awareness and support for their unique healthcare needs
- Healthcare providers, researchers, and advocacy organizations working to address the challenges of rare diseases
- The general public, who may gain a better understanding of the impact of rare diseases and the importance of supporting affected individuals and their communities
Procedural and Timeline Considerations:
- The concurrent resolution has been chaptered by the Secretary of State, indicating that it has been officially adopted and recognized by the state government
- The designation of Rare Disease Day will be observed annually on the last day of February, providing an ongoing platform for awareness and advocacy efforts
Compiled from official sources — confirm details with the bill’s official record.
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