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Bill

Bill

SCR 184

Relative to Frontotemporal Degeneration Awareness Week.

2025-2026 Regular Session Introduced by Roger Niello

Designates Frontotemporal Degeneration Awareness Week to boost statewide awareness, education, and resources for those affected and their families.

From committee: Ordered to third reading.
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Bill Summary · SCR 184

Summary of SCR 184 (2025-2026, California)

Purpose and intent

  • SCR 184 designates a period of awareness or recognition related to Frontotemporal Degeneration (FTD) within the state, specifically aiming to establish Frontotemporal Degeneration Awareness Week. The resolution seeks to raise public awareness, understanding, and support for individuals and families affected by FTD, a form of neurodegenerative disease.

Key provisions

  • Proclaims a designated week or period to be recognized statewide as Frontotemporal Degeneration Awareness Week (or similar naming as specified in the resolution).
  • Encourages appropriate public observances and activities to inform Californians about FTD, its symptoms, impact, and the need for resources and research.
  • Encourages state agencies, organizations, and educational and health communities to promote awareness, share information, and support outreach and education related to FTD.
  • May request or invite coordination with public health entities, patient advocacy groups, researchers, and medical professionals to participate in awareness activities and informational dissemination.
  • Encourages recognition of the experiences of individuals living with FTD, as well as caregivers and families, and promotes access to support services and resources.

Who is affected

  • The resolution primarily affects state acknowledgement and messaging rather than imposing new statutory requirements or mandates.
  • It engages state agencies, public health departments, health care providers, educational institutions, patient advocacy groups, and community organizations to participate in awareness efforts.
  • Individuals and families affected by Frontotemporal Degeneration stand to benefit from increased awareness, information access, and support networks.

Procedural and timeline aspects

  • Legislative history:
    • Introduced and referred to the Assembly Rules, Examining, and Legislative Support (RLS) Committee on June 8, 2026.
    • On June 15, 2026, the committee ordered the resolution to third reading, indicating progress toward approval by the full chamber.
  • As a concurrent or non-binding resolution, the measure does not create new state law or spending obligations, but it may encourage activities, recognition, and awareness efforts by various entities.
  • If adopted by both Legislative houses (and signed by the Governor, as applicable), the resolution would officially designate the awareness period and authorize and encourage related observances and outreach during that time frame.

Practical impact

  • Increases statewide visibility for Frontotemporal Degeneration issues.
  • Potentially informs and educates the public, caregivers, and healthcare professionals about FTD symptoms, caregiving needs, and available resources.
  • Supports fundraising, research sponsorship, and community programming by aligning with awareness initiatives.
  • No direct fiscal mandate or statutory regulation is imposed; any costs would be limited to voluntary participation by agencies and organizations in awareness activities.

Sponsorship

  • Co-sponsored by Roger Niello (indicating bipartisan or collaborative sponsorship, depending on the Legislature’s context).

Note: As a non-binding resolution, SCR 184 primarily serves to acknowledge and promote awareness rather than establish new laws or mandatory policies.

Compiled from official sources — confirm details with the bill’s official record.

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