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ACR 93

Relative to Aromatic L-Amino Acid Decarboxylase Deficiency Awareness Day.

2025-2026 Regular Session Introduced by Dawn Addis and 68 co-sponsors

California designates an annual Aromatic L-Amino Acid Decarboxylase Deficiency Awareness Day to increase public recognition of this rare genetic neurological disorder.

Chaptered by Secretary of State - Res. Chapter 153, Statutes of 2025.
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Bill Summary · ACR 93

Legislative bill overview

ACR 93 designates a specific day in California as "Aromatic L-Amino Acid Decarboxylase Deficiency Awareness Day" to recognize and raise awareness about this rare genetic disorder. The bill passed unanimously through the California Senate and Assembly before being chaptered into law in July 2025.

Why is this important

Aromatic L-Amino Acid Decarboxylase (AADC) Deficiency is an extremely rare inherited metabolic disorder that causes severe neurological symptoms in infants and children, including developmental delays, movement disorders, and oculogyric crises. Awareness days for rare diseases help increase public knowledge, support patient advocacy, and encourage research funding and clinical attention to conditions that affect relatively small populations.

Potential points of contention

  • Scope of awareness bills: Some argue that legislative time should prioritize substantive policy changes rather than symbolic recognition measures, especially when dealing with very rare conditions affecting small numbers of people
  • Precedent for rare disease designations: Creating awareness days for individual rare diseases could lead to numerous similar requests, raising questions about sustainability and legislative priorities
  • Resource allocation: While awareness is valuable, critics may question whether symbolic recognition adequately translates to improved funding, research, or patient support services for affected families

Compiled from official sources — confirm details with the bill’s official record.

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