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Bill

HB 1884

Relating to the establishment of the sickle cell disease registry.

89th Legislature (2025) Introduced by Nicole Collier and 4 co-sponsors

Texas bill creates statewide sickle cell disease registry to track patient data, improve care coordination, and support research for better health outcomes.

Referred to s/c on Dis Prev & Women's & Children's Health by Speaker
#electronicinformationsystems(i0311) #health&humanservicescommission(v0177) #health--otherdiseases&medicalconditions(i0383) #medicalcarefacilities(s0455) #statehealthservices #departmentof(v0463)
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Bill Summary · HB 1884

Legislative bill overview

HB 1884 establishes a statewide sickle cell disease registry in Texas to collect and maintain data on individuals diagnosed with sickle cell disease. The registry would track disease prevalence, patient outcomes, and treatment patterns to improve public health understanding and clinical care coordination.

Why is this important

Sickle cell disease disproportionately affects Black Americans and other populations of color, yet data on disease burden and outcomes in Texas remains fragmented. A centralized registry enables health officials to identify gaps in care, allocate resources more effectively, and support research that could improve treatment and quality of life for affected Texans.

Potential points of contention

  • Privacy and data security concerns: Registry systems require collecting sensitive health information; stakeholders may debate safeguards against unauthorized access or data breaches
  • Participation requirements: Whether registry enrollment should be mandatory or voluntary, and how to achieve adequate participation from diverse populations
  • Resource allocation: Cost of establishing and maintaining the registry infrastructure, and whether funding comes from existing budgets or requires new appropriations

Compiled from official sources — confirm details with the bill’s official record.

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