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Bill

SB 1497

RELATING TO RARE DISEASES.

2026 Regular Session Introduced by Troy Hashimoto

Hawaii SB 1497 addresses rare disease policy but lacks publicly detailed provisions; potential impact includes treatment access, insurance coverage, and diagnostic resource allocation for Hawaii residents with rare conditions.

Carried over to 2026 Regular Session.
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Bill Summary · SB 1497

Legislative bill overview

SB 1497 is a Hawaii bill related to rare diseases that was introduced in January 2025. The bill currently lacks publicly available detailed text describing specific provisions, making comprehensive analysis of its exact mechanisms difficult at this stage.

Why is this important

Rare disease legislation typically affects a small but vulnerable population—approximately 30 million Americans live with rare conditions. Hawaii-specific rare disease policy can impact access to treatments, insurance coverage, diagnostic resources, and support services for affected residents and families.

Potential points of contention

  • Scope and definition: What qualifies as a "rare disease" under Hawaii law and whether the definition aligns with federal standards (FDA definition: affecting fewer than 200,000 people)
  • Cost implications: Whether the bill creates new healthcare mandates, insurance requirements, or research funding that could increase state expenses or insurance premiums
  • Implementation mechanisms: How the state will enforce provisions and coordinate with existing federal rare disease programs and pharmaceutical regulations

Compiled from official sources — confirm details with the bill’s official record.

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