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SJR 100

Relating to: proclaiming the last full week of September as Frontotemporal Dementia Awareness Week.

2025-2026 Regular Session Introduced by Rachael Cabral-Guevara and 10 co-sponsors

Designates July in New Jersey as Cleft and Craniofacial Awareness and Prevention Month to raise awareness, promote early diagnosis, and coordinate support for affected families.

Failed to adopt pursuant to Senate Joint Resolution 1
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Bill Summary · SJR 100

Summary — SJR 100

Note on documents provided
- The materials you supplied contain conflicting versions and metadata. The primary substantive text and committee statements describe a New Jersey joint resolution designating July as “Cleft and Craniofacial Awareness and Prevention Month.” A separate “current version” in the packet appears to be a different SJR 100 (Tennessee) confirming an appointment to a state forestry commission. The bill status and sponsor lists also mix dates and entries from different actions. This summary focuses on the cleft/craniofacial awareness resolution (the substantive policy text in the introduced version and committee statements). Verify the official legislative website for the correct, jurisdiction-specific bill file before taking action.

Purpose and intent
- Designate July of each year in New Jersey as “Cleft and Craniofacial Awareness and Prevention Month” to raise public awareness of orofacial clefts (cleft lip and/or cleft palate), encourage education and outreach, and promote collaboration among community organizations, medical institutions, research centers, and advocacy groups to support affected individuals and families and to advance research and prevention.

Key provisions
- Annual designation: July of each year is formally designated as “Cleft and Craniofacial Awareness and Prevention Month” in New Jersey.
- Governor’s proclamation: The Governor is requested to issue an annual proclamation recognizing the month and calling upon public officials and citizens to observe it with appropriate activities and programs.
- Purpose of observance: Increase public knowledge of the existence, causes, diagnosis, and treatments for orofacial clefts; foster support and resources for affected families; encourage early diagnosis and intervention; and promote collaborative research into causes and prevention.
- Effective date: The joint resolution takes effect immediately upon adoption.

Facts and findings cited in the resolution
- Describes what cleft lip and cleft palate are, typical health and developmental challenges (feeding, speech, ear infections, hearing and dental problems), and treatment options (including surgery).
- Prevalence cited: introduced text lists approximate U.S. rates (e.g., about 1 in 1,600 for cleft lip with cleft palate; 1 in 2,800 for cleft lip without palate; about 1 in 1,700 for cleft palate). New Jersey-specific NJSHAD data (2000–2019 births) are cited, including 2019 rates presented per 10,000 live births (4.43 with cleft lip with palate; 1.41 cleft palate without cleft lip).
- Notes that causes are often unknown, with genetic and environmental factors under study.

Who is affected
- Directly: New Jersey residents born with orofacial clefts and their families (access to awareness, support, and early intervention information).
- Indirectly: State and local health departments, medical institutions, research centers, advocacy and community organizations that may participate in outreach, education, and research coordination.

Procedural status (from supplied materials)
- Introduced: March 18, 2024.
- Reported out of Senate Health Committee: June 20, 2024.
- Passed Senate: June 30, 2025 (39–0).
- Received in Assembly and referred to Assembly Health Committee: July 24, 2025.
- Reported out of Assembly Health Committee: November 24, 2025.
- Companion measure: AJR 150.
- Current scheduling/status entries in the packet are inconsistent; confirm final disposition in the official legislature record.

Potential impact
- Symbolic and awareness-raising: No fiscal impacts or regulatory changes; mainly provides an annual focal point for outreach, education, and coordination of services.
- May help concentrate advocacy and research efforts in New Jersey and encourage improved early diagnosis and support services for affected children and families.

If you want, I can:
- Extract an exact timeline of actions from the official legislative docket for a specific jurisdiction, or
- Produce a short press-ready description or talking points for use by advocacy groups.

Compiled from official sources — confirm details with the bill’s official record.

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