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Bill

HR 387

Recognizing ALS Awareness Month, May 2026.

136th Legislature (2025-2026) Introduced by Melanie Miller

Ohio designates May 2026 as ALS Awareness Month to boost public awareness, understanding, and support for those affected by ALS and ongoing research.

Adopted
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Bill Summary · HR 387

Summary of Bill HR 387 (Ohio, 136th General Assembly)

Basic Information

  • Type: House Resolution (H. R. No. 387)
  • Session/Jurisdiction: Ohio, 136th General Assembly, Regular Session
  • Sponsor: Representative Miller (Co-sponsor: Melanie Miller)
  • Status: Adopted by the Ohio House (April 13, 2026)
  • Title/Purpose: Recognizing Amyotrophic Lateral Sclerosis (ALS) Awareness Month, May 2026

1) Main Purpose and Intent

  • The bill is a formal expression of recognition by the Ohio House of Representatives.
  • It designates May 2026 as ALS Awareness Month in Ohio.
  • The resolution acknowledges the impact of ALS, describes the disease, and highlights the importance of awareness, public understanding, support, and continued research.

2) Key Provisions and Changes

  • Recognition Language: The resolution provides a narrative describing what ALS is, including:
    • ALS (formerly Lou Gehrig’s Disease) as a neurological disorder affecting motor neurons.
    • The progression of the disease leading to loss of voluntary movement and breathing, with typical decline toward dependence on care, and eventual death from respiratory failure (often within about five years of onset).
    • The unknown cause and lack of a cure, while noting that some treatments may slow progression.
    • The role of research and entities like the National ALS Registry in collecting data to inform better treatments and potential cures.
  • Designation: Establishes May 2026 as ALS Awareness Month in the state.
  • Public Awareness and Outreach: Encourages public understanding, support, and encouragement to improve the quality of life for those affected, their families, and caregivers.
  • Transmission Directive: Requires the Clerk of the House to transmit duly authenticated copies of the resolution to Ohio news media.

3) Affected Parties and Impacts

  • Primary Beneficiaries: Individuals living with ALS, their families, and caregivers, who may benefit from heightened awareness, public sympathy, and potential support services.
  • General Public: Increases awareness and understanding of ALS among Ohio residents.
  • Media: Receives copies of the resolution to help disseminate information about ALS Awareness Month.
  • Researchers and Health Advocates: While not mandated to take specific actions, the resolution acknowledges the importance of ongoing research and registry data, which can influence public discourse and potential advocacy.

4) Procedural and Timeline Aspects

  • Effective Date/Action: The resolution was adopted by the Ohio House on April 13, 2026.
  • Annual Recognition: The language designates May 2026 specifically as ALS Awareness Month; the resolution implies annual awareness efforts in that month’s period.
  • Next Steps: Requires the Clerk to distribute authenticated copies to Ohio news media to publicize the designation.

Notes

  • The bill is a ceremonial/recognition measure, not a substantive policy statute. It does not create new programs or funding, but it formally acknowledges ALS Awareness Month and promotes awareness and education about the disease.

Compiled from official sources — confirm details with the bill’s official record.

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