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HB 1445

Pub. Rec./Parkinson's Disease Registry

2026 Regular Session Introduced by Demi Busatta and 1 co-sponsor

Florida establishes a public Parkinson's disease registry to collect patient data for research and public health purposes, raising privacy and data-access concerns.

Chapter No. 2026-10
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Bill Summary · HB 1445

Legislative bill overview

HB 1445 establishes a Parkinson's Disease Registry in Florida as a public record system to collect and maintain data on individuals diagnosed with Parkinson's disease. The registry would enable researchers, public health officials, and healthcare providers to access epidemiological information to better understand disease prevalence, patterns, and outcomes across the state.

Why is this important

Parkinson's disease affects thousands of Floridians, yet comprehensive state-level data on patient populations remains fragmented across private healthcare systems. A centralized registry can accelerate research into causes and treatments, help identify geographic clusters or risk factors, and support public health planning and resource allocation for affected communities.

Potential points of contention

  • Privacy concerns: Creating a disease-specific public registry raises questions about data security, unauthorized access, and whether individuals diagnosed with Parkinson's should have opt-in versus automatic enrollment protections.
  • Data governance: Unclear definitions of who can access registry information (researchers, insurers, employers) and under what circumstances could determine whether the registry serves public health or enables discrimination.
  • Scope and sustainability: The bill's funding mechanism, maintenance costs, and whether participation will be mandatory or voluntary are critical details that affect both implementation feasibility and voluntary participation rates.

Compiled from official sources — confirm details with the bill’s official record.

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