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Bill

HR 173

PRADER-WILLI SYNDROME MONTH

104th Regular Session Introduced by Mike Coffey and 3 co-sponsors

Illinois designates an awareness month for Prader-Willi Syndrome to increase public recognition of this rare genetic disorder affecting growth and metabolism.

Resolution Adopted
0
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Bill Summary · HR 173

Legislative bill overview

HR 173 designates a month in Illinois as Prader-Willi Syndrome (PWS) Awareness Month. This is a symbolic resolution that recognizes and promotes awareness of Prader-Willi Syndrome, a rare genetic disorder affecting growth, metabolism, and behavior. The bill was adopted by the Illinois House in May 2025.

Why is this important

Prader-Willi Syndrome is a serious genetic condition affecting approximately 1 in 15,000 births, characterized by low muscle tone, developmental delays, hormonal imbalances, and compulsive eating behaviors that can lead to severe obesity. Designating an awareness month helps increase public understanding, supports affected families, and can drive funding and research priorities for a condition that many people outside the medical community are unfamiliar with.

Potential points of contention

  • Resource allocation: Some may question whether symbolic resolutions represent the most effective use of legislative time compared to bills allocating funding or resources for PWS research and support services
  • Selectivity of rare diseases: With thousands of rare conditions, questions may arise about equity in choosing which disorders receive official recognition
  • Limited practical impact: Unlike legislation requiring medical coverage or funding, awareness designations carry no enforcement mechanism or budgetary commitment

Compiled from official sources — confirm details with the bill’s official record.

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