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J 461

Memorializing Governor Kathy Hochul to proclaim March 2025, as Alport Syndrome Awareness Month in the State of New York

2025 Regular Session Introduced by Gustavo Rivera

Summary of Legislative Bill J 461 OverviewThis bill is a resolution that memorializes (officially requests) Governor Kathy Hochul to proclaim March 2025 as Alport Syndrome Awarenes

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Bill Summary · J 461

Summary of Legislative Bill J 461

Overview

This bill is a resolution that memorializes (officially requests) Governor Kathy Hochul to proclaim March 2025 as Alport Syndrome Awareness Month in the State of New York. Alport syndrome is a rare genetic condition that can lead to progressive kidney disease, hearing loss, and eye abnormalities.

Purpose and Intent

The main purpose of this bill is to raise awareness about Alport syndrome and its impacts. By designating an official awareness month, the state government aims to:

  • Educate the public about the symptoms, causes, and effects of Alport syndrome
  • Highlight the challenges faced by individuals and families affected by this rare disease
  • Encourage research, early diagnosis, and improved treatment options for Alport syndrome

Key Provisions

  • Requests that Governor Hochul issue a proclamation declaring March 2025 as "Alport Syndrome Awareness Month" in New York
  • Encourages state agencies, organizations, and citizens to participate in awareness-raising activities during the designated month
  • Directs the Secretary of the Senate to transmit copies of the resolution to the Governor and relevant state agencies

Impact and Timeline

This resolution, if adopted, would have the following impacts:

  • Increased public awareness and understanding of Alport syndrome in New York
  • Potential for greater funding and support for Alport syndrome research and patient services
  • Opportunity for the Alport syndrome community to organize education and advocacy events during the awareness month

The resolution is expected to take effect immediately upon adoption. The designated awareness month of March 2025 would occur approximately one year after the bill's passage.

Compiled from official sources — confirm details with the bill’s official record.

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