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J 464

Memorializing Governor Kathy Hochul to proclaim April 2025, as TAR Syndrome Awareness Month in the State of New York

2025 Regular Session Introduced by Mark Walczyk

Urges the NY Governor to proclaim April 2025 as TAR Syndrome Awareness Month, raising public awareness and support for affected individuals, with ceremonial, nonfunded status.

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Bill Summary · J 464

Summary of Bill J 464: Memorializing Governor Hochul to Proclaim April 2025 as TAR Syndrome Awareness Month

Overview

  • Bill Number: J 464
  • Title: Memorializing Governor Kathy Hochul to proclaim April 2025 as TAR Syndrome Awareness Month in the State of New York
  • Classification: Joint Memorial/Resolution (non-binding)
  • Status: ADOPTED
  • Introduced: March 6, 2025
  • Primary Sponsor: Mark Walczyk
  • Legislative Actions:
    • Referred to Finance on 2025-03-06
    • Reported to calendar for consideration on 2025-03-11
    • Adopted on 2025-03-11

Purpose and Intent

The bill is a joint memorial that requests the Governor of New York to issue a proclamation-designating April 2025 as TAR Syndrome Awareness Month in New York. The aim is to publicly acknowledge TAR syndrome, raise awareness about the condition, and honor individuals and families affected by TAR syndrome while encouraging education, advocacy, and support resources.

Key Provisions

  • Urges the Governor to proclaim April 2025 as TAR Syndrome Awareness Month in the State of New York.
  • Emphasizes awareness-raising, education, and advocacy associated with TAR syndrome.
  • As a memorial, does not authorize state spending or create new programs; its effect is ceremonial, symbolic recognition by the executive branch.

Background: TAR Syndrome

  • TAR stands for thrombocytopenia-absent-radius syndrome, a rare congenital disorder.
  • Core characteristics typically include:
    • Absent or underdeveloped radius bones in the forearms (limb difference)
    • Thrombocytopenia (low platelet counts), which can affect bleeding risk
  • The condition often requires medical management, early diagnosis, and ongoing support from healthcare providers, families, and patient advocacy groups.
  • Proclamations and awareness months aim to inform the public, support affected individuals, and promote research and resources.

Who is Affected or Benefited

  • Individuals with TAR syndrome and their families.
  • Healthcare professionals, educators, and social services personnel who support awareness and resources.
  • Patient advocacy organizations and community groups focused on rare diseases.
  • The broader public, through increased awareness and education about TAR syndrome.

Procedural and Timeline Details

  • Introduced: March 6, 2025
  • Referred to Finance (common for memorials to confirm financial/administrative implications; typically not creating new expenses)
  • Reported to calendar for consideration: March 11, 2025
  • Adopted: March 11, 2025
  • Next step (non-binding): The Governor would be requested to issue a proclamation for April 2025 as TAR Syndrome Awareness Month. The proclamation, if issued, would be ceremonial and non-funding.

Potential Impact

  • Increases public awareness of TAR syndrome within New York.
  • Supports visibility for affected individuals and families and may encourage related fundraising, education, and advocacy efforts.
  • No direct fiscal impact or new state programs are created by the resolution itself; its value is symbolic and ceremonial.

Notes

  • This summary reflects the bill’s status as of adoption and its memorial nature. The content does not create new law or spending but seeks gubernatorial proclamation to designate April 2025 as TAR Syndrome Awareness Month.

Compiled from official sources — confirm details with the bill’s official record.

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