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HB 1199

INSURANCE/HEALTH: Provides relative to health insurance coverage for genetic testing and the treatment of SCN2A-associated medical conditions (EN NO IMPACT See Note)

2026 Regular Session Introduced by Gary Carter and 6 co-sponsors

Louisiana requires health insurers to cover SCN2A genetic testing and treatment without cost-sharing for patients with rare early-onset epilepsy-causing mutations.

Effective date: 06/09/2026.
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Bill Summary · HB 1199

Legislative bill overview

HB 1199 requires health insurance plans in Louisiana to cover genetic testing for SCN2A gene mutations and treatment of SCN2A-associated medical conditions without cost-sharing (copays, coinsurance, or deductibles). SCN2A mutations cause severe early-onset epilepsy and other neurological disorders, often appearing in infancy. The bill mandates this coverage as an essential health benefit.

Why is this important

Genetic testing and specialized treatments for SCN2A conditions can be prohibitively expensive, potentially costing thousands of dollars without insurance coverage. Affected families—primarily those with infants and young children experiencing severe seizures—currently face financial barriers to diagnosis and evidence-based treatment. This bill aims to ensure timely diagnosis and access to emerging therapies that can significantly improve outcomes for a rare but severe genetic condition.

Potential points of contention

  • Insurance cost concerns: Insurers may argue the mandate increases premiums for all policyholders to cover a rare condition affecting a small population
  • Definition and scope creep: Unclear whether "treatment" includes all experimental or off-label medications, or only FDA-approved therapies, potentially creating disputes over coverage limits
  • Genetic testing standards: No specified criteria for which genetic tests qualify, raising questions about authorization processes and whether multiple testing options are covered
  • Federal vs. state authority: Potential conflicts with federal health insurance regulations and whether state mandates can override broader insurance frameworks

Compiled from official sources — confirm details with the bill’s official record.

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