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HB 4016

Holidays: other; "Huntington's Disease Awareness Month"; designate as the month of May of each year. Creates new act.

2025-2026 Regular Session Introduced by Joey Andrews and 53 co-sponsors

Designates May as Huntington's Disease Awareness Month to raise public and medical awareness and support research and services; ceremonial, no new funding or regulations.

bill electronically reproduced 01/14/2025
#holidays:other
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Bill Summary · HB 4016

Summary — HB 4016: "Huntington’s Disease Awareness Month"

Purpose / Intent

HB 4016 designates the month of May each year as "Huntington's Disease Awareness Month" to raise public and medical-community awareness of Huntington’s disease (HD), encourage support for research and services, and align state recognition with national awareness practices.

Key legislative findings (selected)

  • Huntington’s disease is a progressive, degenerative neurological disease.
  • The bill cites estimated U.S. figures: over 41,000 Americans living with HD and roughly 200,000 genetically at risk.
  • Each child of a parent with HD faces a 50% chance of inheriting the causative gene.
  • Typical adult onset is between ages 30 and 50, though juvenile onset can occur (reported as young as age 2).
  • Average lifespan after disease onset is cited as 10–20 years; earlier onset often means more rapid progression.
  • Adult-onset HD is associated with the color blue; juvenile-onset HD with purple.

Key provisions

  • Declares that May of each year shall be known in the state as "Huntington's Disease Awareness Month."
  • States the purpose: to increase awareness among the general public and medical community and to support research and services for those affected.
  • The bill is a recognition/ceremonial measure; it does not create new programs, funding, regulatory changes, or penalties.

Who is affected

  • Primarily symbolic — residents and public institutions are encouraged to recognize and observe the month.
  • Intended beneficiaries include individuals and families affected by Huntington’s disease, researchers, and healthcare providers who may benefit from increased awareness and engagement.

Procedural status / timeline (as provided)

  • Introduced: January 14, 2025 (introduced by Rep. Erin Byrnes with multiple co-sponsors listed).
  • Committee activity: Referred to Committee on Government Operations; readings and referrals recorded; public hearing held 2025-04-09 (testimony taken); left pending in committee 2025-04-09.
  • Companion: SB 2292 is listed as a companion bill.

Notes / Clarification

  • The document provided appears to contain text from two different bills both labeled HB 4016 (one related to Huntington’s Disease Awareness Month — a Michigan measure — and another unrelated Illinois bill concerning repeal of provisions of a prior Senate bill). This summary focuses on the Huntington’s Disease Awareness Month measure described in the Michigan portion of the submission.

Compiled from official sources — confirm details with the bill’s official record.

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