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SB 2349

Health, Dept. of - As introduced, directs the department to create an outreach campaign regarding the ongoing research of Charcot-Marie-Tooth Disease; terminates the outreach campaign on July 1, 2027. - Amends TCA Title 68.

114th Regular Session (2025-2026) Introduced by Joey Hensley

Tennessee's health department must run a public awareness campaign about Charcot-Marie-Tooth Disease research through July 2027.

Placed on Senate Finance, Ways, and Means Committee calendar for 4/20/2026
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Bill Summary · SB 2349

Legislative bill overview

SB 2349 requires Tennessee's Department of Health to launch and conduct a public outreach campaign focused on Charcot-Marie-Tooth Disease (CMT) research. The campaign has a sunset provision, automatically terminating on July 1, 2027, unless the legislature extends it.

Why is this important

CMT is a rare inherited neurological disorder affecting nerve function in the feet and legs. Public awareness campaigns can improve early diagnosis rates, patient support access, and research participation—outcomes particularly important for rare diseases that often go undiagnosed or misdiagnosed for years.

Potential points of contention

  • Cost and resource allocation: The bill does not specify funding amounts or budget sources, raising questions about whether existing departmental resources will be redirected or new appropriations are needed
  • Narrow focus for a rare disease: Critics may question whether a statewide campaign for one specific disease is the most efficient public health expenditure, or whether broader rare disease awareness would be more cost-effective
  • Vague campaign requirements: The bill provides minimal detail on campaign scope, methods, duration, or success metrics, giving the Department significant discretion over implementation

Compiled from official sources — confirm details with the bill’s official record.

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