FTD AWARENESS WEEK

104th Regular Session Introduced by Adam Niemerg

The bill designates a week in Illinois as FTD Awareness Week to promote education, outreach, and recognition of Frontotemporal Degeneration.

Rule 19(b) / Re-referred to Rules Committee

Summary of HR 880 (104th Illinois General Assembly) – FTD Awareness Week

Purpose and intent

The bill designates a specific period as FTD Awareness Week within the state of Illinois. The goal is to recognize and raise public awareness about Frontotemporal Degeneration (FTD), a group of brain disorders that affect personality, behavior, and language.

Sponsored in part by Adam Niemerg (co-sponsor), the measure seeks to provide official recognition through a formal designation rather than creating new programs or funding, unless additional provisions are attached.

Key provisions and changes

Establishment of FTD Awareness Week: The bill enacts an official state designation for a designated week to promote awareness, education, and outreach regarding FTD.

Recognition and observance: Likely directs state agencies, organizations, and communities to observe the week through participation, proclamations, or related activities. (Details such as which specific days or how activities are to be conducted would be specified in the bill’s text.)

Education and outreach goals: Intended to encourage dissemination of information about FTD symptoms, diagnosis, and support resources, potentially guiding public health communications and partnerships with medical communities and advocacy groups.

Relationship to existing health awareness efforts: The bill situates FTD awareness within broader state health awareness initiatives, though it does not appear to prescribe new funding or mandatory programs unless additional sections specify such provisions.

Who/what would be affected

General public within Illinois: Increased visibility and awareness of FTD during the designated week.

Individuals and families affected by FTD: Potentially improved access to information, resources, and support mechanisms highlighted during the observance.

State agencies and institutions: May be encouraged to participate in proclamations, educational campaigns, or events during FTD Awareness Week.

Advocacy and healthcare organizations: Could collaborate with state entities to promote awareness activities.

Procedural and timeline aspects

Legislative status: Introduced in the 104th Illinois General Assembly with sponsorship by Adam Niemerg (co-sponsor). The bill’s progress, committee referrals, and final passage would determine its enactment.

Designation timing: The bill would specify the annual week for observance and any associated dates; implementation would follow once the bill is enacted.

Administrative requirements: If included, potential administrative guidance or proclamations would be issued to relevant state agencies and partners during the observance.

Notes

The summary reflects typical elements of a bill creating a health awareness designation. The exact legislative language would provide details on the week’s specific dates, any required activities, and whether the measure includes funding or administrative provisions.