WeVote

Bill

Bill

A 1985

Establishes a state frontotemporal degeneration registry

2025 Regular Session Introduced by Anil Beephan and 5 co-sponsors

Overview: A 1985 - Establishes a state frontotemporal degeneration registryPurpose and Intent: This bill aims to establish a state registry for frontotemporal degeneration (FTD), a

SUBSTITUTED BY S598B
0
WeVote Research Nonpartisan
Bill Summary · A 1985

Overview: A 1985 - Establishes a state frontotemporal degeneration registry
Purpose and Intent: This bill aims to establish a state registry for frontotemporal degeneration (FTD), a type of progressive dementia that affects the frontal and temporal lobes of the brain. The registry would collect data on the incidence, prevalence, and characteristics of FTD in order to better understand and address this debilitating condition.

Key Provisions:
- Requires the state department of health to establish and maintain a registry for FTD
- Mandates healthcare providers to report FTD cases to the registry
- Authorizes the department to collect demographic, clinical, and other relevant data on FTD patients
- Allows the department to conduct research and analysis using the registry data

Affected Parties and Impacts:
- Individuals diagnosed with frontotemporal degeneration and their families
- Healthcare providers, including physicians, nurses, and other clinicians
- Researchers and policymakers focused on neurodegenerative diseases

Procedural and Timeline Considerations:
This bill has been substituted by S598B, indicating it has been replaced by a similar measure in the state senate. The current status and next steps are unclear from the information provided.

Compiled from official sources — confirm details with the bill’s official record.

Sign in to ask a question.