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Bill

LB 1138

Establish a dementia registry

106th Legislature (2019-2020) Introduced by Anna Wishart

Nebraska bill creates statewide dementia registry to track disease prevalence and improve public health monitoring and care coordination for affected individuals.

Indefinitely postponed
0
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Bill Summary · LB 1138

Legislative bill overview

LB 1138 proposes establishing a statewide dementia registry in Nebraska to track individuals diagnosed with dementia and collect data on the disease's prevalence and progression. The registry would serve as a centralized database to help public health officials monitor dementia cases and potentially improve care coordination and research efforts.

Why is this important

Dementia affects thousands of Nebraskans and their families, creating significant healthcare and social service demands. A registry could provide valuable epidemiological data to inform resource allocation, identify emerging trends, and support both clinical care improvements and research initiatives targeting this growing public health concern.

Potential points of contention

  • Privacy concerns: Collecting and maintaining centralized health data on individuals raises questions about data security, patient privacy protections, and who can access the information
  • Implementation costs: Establishing and maintaining a statewide registry requires funding for infrastructure, staff, and ongoing operations that may strain limited state health department resources
  • Mandatory reporting requirements: The bill likely would require healthcare providers to report dementia diagnoses, which could create compliance burdens and administrative challenges for medical practices

Compiled from official sources — confirm details with the bill’s official record.

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