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Missouri HB1756 designates the first full week in September as June's Week and Rare Pediatric Disease Week to raise awareness and honor a child with ATRT-B.
Missouri HB1756 designates the first full week in September as June's Week and Rare Pediatric Disease Week to raise awareness and honor a child with ATRT-B.
Note on scope and source documents
- The materials provided include multiple, different bills all labeled “HB 1756” from several states (Missouri, Arkansas, Illinois, Mississippi). This summary focuses on the Missouri observance bill text that best matches the requested title (“June’s Week” / rare pediatric diseases). Where the provided materials conflict or include separate HB1756 measures (see “Other HB 1756 items” below), those are summarized briefly at the end.
Main purpose and intent
- Designate an annual week as an official state observance to raise awareness of rare pediatric diseases and to honor a specific Missouri child named June, who is undergoing treatment for atypical teratoid rhabdoid tumor, subtype B (ATRT‑B). The aim is symbolic recognition and public education/awareness.
Key provisions
- Adds a new section to Chapter 9, RSMo (proposed RSMo 9.501) that:
- Designates the first full week in September each year as “June’s Week” and “Rare Pediatric Disease Week” in Missouri (text provided in the bill uses the first full week in September).
- Recognizes and honors June, a Missouri child being treated for ATRT‑B.
- Encourages Missouri citizens to participate in appropriate events and activities to:
- Raise public awareness of rare pediatric diseases,
- Encourage early recognition of symptoms, and
- Honor children and families affected by rare pediatric diseases.
- No regulatory mandates, funding provisions, or program creation are included in the Missouri text; the measure is declaratory/observational.
Who or what is affected
- Broadly affects the public and state/civic organizations by encouraging voluntary awareness activities. It does not create new legal obligations, change benefits, or appropriate funds.
- May result in increased awareness campaigns by health nonprofits, advocacy groups, hospitals, schools, or local governments planning awareness events during the designated week.
Procedural / timeline notes and discrepancies
- The header provided lists the bill as “Prefiled (H)” and introduced 01/07/2025.
- The bill text designates the first full week in September, while the user-supplied title references the first week of June — the materials are inconsistent. If the sponsor’s intent was a June observance, confirm the final enrolled text with the Missouri General Assembly or the bill’s legislative history.
- The documents also include varied legislative actions and references (including enactment notations for other states). Verify the current status (introduced, passed, enacted) in the official Missouri legislative status lookup for HB 1756 (session year 2025) before relying on it as law.
Other HB 1756 items included in supplied materials (brief)
- Arkansas HB 1756 (education): Amends community service diploma rules — requires public high school students (graduating class 2026‑27 onward) to complete 75 hours; permits parents/guardians to document and maintain hours; allows Department of Education audits; estimated DESE cost up to ~$70,000 for monitoring staff.
- Illinois HB 1756 (revenue): Amends Property Tax Code to raise the maximum income limit for the low‑income senior citizens assessment freeze homestead exemption to $75,000 for taxable years 2026 and thereafter.
- Mississippi HB 1756 (appropriation): Large, unrelated appropriations bill and administrative provisions for the Mississippi Athletic Commission (FY2026), including specified headcount and statutory budget controls.
Recommendation
- Because the provided materials are a mix of different states’ bills with inconsistent dating and text, confirm which jurisdiction and final enrolled text you want summarized or relied upon. If you want, I can produce a focused, standalone summary of any one of the state-specific HB 1756 bills (Missouri, Arkansas, Illinois, or Mississippi).
Compiled from official sources — confirm details with the bill’s official record.
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