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Bill

HB 1944

DNA and Genetic Testing - As introduced, directs the department of health to test for the presence of sickle cell trait in each newborn and, if the test results are positive for sickle cell trait, to notify the parent or legal guardian of the newborn tested as soon as practicable. - Amends TCA Title 68, Chapter 5.

114th Regular Session (2025-2026) Introduced by Harold Love

Tennessee mandates newborn screening for sickle cell trait with parental notification, expanding genetic testing in state health protocol.

Signed by Governor.
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Bill Summary · HB 1944

Legislative bill overview

HB 1944 requires Tennessee's Department of Health to screen all newborns for sickle cell trait and notify parents of positive results. The bill amends existing newborn screening protocols under Tennessee Code Annotated Title 68, Chapter 5 to specifically mandate this genetic testing and parental notification.

Why is this important

Sickle cell trait affects approximately 1 in 12 African Americans and can have health implications for carriers, including exercise-related complications and reproductive considerations. Early identification allows families to make informed medical decisions, receive genetic counseling, and ensure appropriate monitoring—though sickle cell trait itself is typically asymptomatic in carriers.

Potential points of contention

  • Scope of government health mandates: Questions about whether mandatory genetic screening for traits (rather than diseases) exceeds appropriate state health authority or conflicts with parental autonomy in medical decisions
  • Implementation costs and burden: Unclear funding mechanism for expanded screening, testing, and notification systems that the Department of Health must implement
  • Genetic information privacy and use: Concerns about how genetic data is stored, who has access, and whether results could affect insurance, employment, or other aspects of a child's life despite trait-only status

Compiled from official sources — confirm details with the bill’s official record.

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