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Bill

SR 12

DESIGNATING SEPTEMBER 21-28, 2025, AS “FRONTOTEMPORAL DEGENERATION AWARENESS WEEK” IN THE STATE OF DELAWARE.

153rd General Assembly (2025-2026) Introduced by Kyra Hoffner

Delaware designates September 21-28, 2025, as Frontotemporal Degeneration Awareness Week to increase public recognition of the progressive neurological disease.

Passed By Senate. Votes: 21 YES
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Bill Summary · SR 12

Legislative bill overview

SR 12 designates September 21-28, 2025, as "Frontotemporal Degeneration Awareness Week" in Delaware. This is a ceremonial resolution that directs state recognition and public attention toward frontotemporal degeneration (FTD), a progressive neurological disease, during the specified week.

Why is this important

Frontotemporal degeneration is a relatively rare but devastating form of dementia that typically strikes people in their 40s-60s, often before Alzheimer's disease becomes prevalent in younger populations. Awareness weeks help patients, families, and healthcare providers recognize symptoms earlier, reduce stigma, and potentially increase funding and research attention for a disease that lacks effective treatments and cures.

Potential points of contention

  • Resource allocation: Critics may question whether symbolic resolutions address actual funding needs for FTD research and patient support services
  • Proliferation of awareness designations: Some argue that numerous awareness weeks dilute public attention and legislative focus on substantive health policy
  • Limited tangible impact: Without accompanying appropriations or policy changes, the resolution's practical effect on FTD patients and research remains uncertain

Compiled from official sources — confirm details with the bill’s official record.

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