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SCR 86

DESIGNATING MAY 15, 2025, AS “TUBEROUS SCLEROSIS COMPLEX AWARENESS DAY” IN DELAWARE.

153rd General Assembly (2025-2026) Introduced by Kyra Hoffner and 6 co-sponsors

Delaware designates May 15, 2025, as Tuberous Sclerosis Complex Awareness Day to recognize the rare genetic disorder and promote public understanding.

Passed In House by Voice Vote
0
WeVote Research Nonpartisan
Bill Summary · SCR 86

Legislative bill overview

SCR 86 designates May 15, 2025, as "Tuberous Sclerosis Complex Awareness Day" in Delaware. This is a concurrent resolution—a symbolic measure that does not carry the force of law but expresses the legislature's recognition of a health condition and designated awareness date.

Why is this important

Tuberous sclerosis complex (TSC) is a rare genetic disorder causing non-cancerous tumors to grow in multiple body organs, affecting approximately 1 in 6,000 births. Awareness designations can increase public understanding, support patient advocacy efforts, and encourage screening and early intervention for affected individuals.

Potential points of contention

  • Selectivity of awareness days: Critics argue that designating specific disease awareness days may create inequitable attention among rare diseases; Delaware could receive numerous similar requests from other patient advocacy groups
  • Symbolic versus substantive value: The resolution itself creates no funding, programs, or policy changes—its impact depends entirely on voluntary compliance with the designation
  • Resource implications: While minimal, state agencies may incur small costs if they commemorate the day through official communications or events

Compiled from official sources — confirm details with the bill’s official record.

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