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Bill

Bill

HCR 10

DESIGNATING FEBRUARY 28, 2025, AS "RARE DISEASE DAY" IN THE STATE OF DELAWARE.

153rd General Assembly (2025-2026) Introduced by Krista Griffith and 3 co-sponsors

Delaware designates February 28, 2025, as Rare Disease Day to raise awareness and recognition for patients with rare diseases.

Passed By Senate. Votes: 19 YES 2 VACANT
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Bill Summary · HCR 10

Legislative bill overview

HCR 10 is a concurrent resolution designating February 28, 2025, as "Rare Disease Day" in Delaware. The bill passed both chambers with strong support and carries no fiscal implications, serving as a symbolic recognition rather than substantive legislation.

Why is this important

Rare Disease Day is an international observance that aims to raise awareness about rare diseases and improve diagnosis, treatment, and social support for affected individuals. In Delaware, this designation provides an official platform to highlight the challenges faced by the estimated 10% of the U.S. population living with rare diseases, many of whom struggle with limited research funding and delayed diagnoses.

Potential points of contention

  • Resource allocation concerns: Critics may question whether symbolic designations address the actual policy needs of rare disease patients, such as insurance coverage, research funding, or expedited FDA approval processes
  • Limited practical effect: As a non-binding concurrent resolution, the designation does not mandate any state action, funding, or program changes—it is purely ceremonial
  • Competing priorities: Some may argue legislative time could be better spent on substantive rare disease policy rather than commemorative measures

Compiled from official sources — confirm details with the bill’s official record.

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