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SCR 51

COMMENDATIONS: Commends April Burkholder Coulter on being inducted into the 2025 class of the Louisiana Sports Hall of Fame.

2025 Regular Session Introduced by Mark Abraham and 21 co-sponsors

Proclaims May 2025 as Cystic Fibrosis Awareness Month to boost public awareness, promote early diagnosis, improve access to care, and support ongoing CF research toward a cure.

Sent to the Secretary of State by the Secretary of the Senate on 5/30/2025.
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Bill Summary · SCR 51

Summary — SCR 51 (Concurrent Resolution): Cystic Fibrosis Awareness Month (May 2025)

Status: Enrolled and filed with the Secretary of State (chaptered as Res. Chapter 114, Statutes of 2025).
Introduced: March 27, 2025.
Author: Senator Laird (as shown in Legislative Counsel’s Digest).
Classification: Concurrent resolution (symbolic, non-binding).
Fiscal Committee: No fiscal committee required.

Main purpose

SCR 51 proclaims May 2025 as “Cystic Fibrosis Awareness Month” and formally expresses the Legislature’s support for public awareness, early diagnosis, access to quality care, and continued research aimed at improving outcomes and finding a cure for cystic fibrosis (CF).

Key findings and statements (select)

  • Cystic fibrosis is a chronic, progressive, multisystem genetic disease for which there is currently no known cure and is the most common fatal genetic disease in the U.S.
  • Over 40,000 people in the United States live with CF; more than 1,000 new cases are diagnosed annually, predominantly via newborn screening.
  • CF affects people of all races and ethnicities; screening gaps and health disparities can lead to mis- or late diagnosis for those with rare CFTR mutations.
  • Advances in care and therapies have improved survival (e.g., projected survival to 61 for 50% of children diagnosed after 2019), but median age of death remains relatively low (reported as 37).
  • NIH estimates more than 10 million Americans are carriers of CF gene mutations.
  • The Cystic Fibrosis Research Institute (CFRI) and similar organizations play key roles funding research, advocacy, education, and psychosocial support.

Provisions / Actions

  • Officially proclaims May 2025 as Cystic Fibrosis Awareness Month.
  • Encourages public education to promote early diagnosis and access to quality care.
  • Advocates for increased support for individuals with CF and their families and supports research toward a cure.
  • Directs the Secretary of the Senate to transmit copies of the resolution to the author for appropriate distribution.

Who is affected / impact

  • Directly: people living with CF, their families, CF advocacy and research organizations, and clinical care centers.
  • Indirectly: public health/medical providers, newborn screening programs, and the general public (through increased awareness).
  • Practical impact: Symbolic and awareness-raising. The resolution does not appropriate funds, change law, or impose regulatory requirements; it may, however, support advocacy, public education campaigns, and coordination among stakeholders.

Procedural timeline (selected)

  • Introduced: March 27, 2025.
  • Passed both houses (recorded actions in May–June 2025).
  • Enrolled and filed with Secretary of State: July 3, 2025.
  • Chaptered as Res. Chapter 114, Statutes of 2025.

Overall, SCR 51 is a ceremonial legislative measure intended to raise awareness about cystic fibrosis, recognize the work of CF organizations (notably CFRI), and encourage measures that promote early diagnosis, quality care, and research.

Compiled from official sources — confirm details with the bill’s official record.

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