WeVote
Log In

Bill

Bill

HR 382

BATTEN DISEASE AWARENESS DAY

104th Regular Session Introduced by Janet Yang Rohr

Illinois designates an annual Batten Disease Awareness Day to increase public recognition of this rare, progressive neurological disorder affecting children.

Referred to Rules Committee
0
WeVote Research Nonpartisan
Bill Summary · HR 382

Legislative bill overview

HR 382 designates a specific day as Batten Disease Awareness Day in Illinois. The bill creates an official state recognition for this rare neurological disorder to increase public understanding and support for affected families and research efforts.

Why is this important

Batten disease is a rare, inherited neurological disorder that typically affects children and leads to progressive vision loss, cognitive decline, and premature death. State awareness designations can help increase funding attention, research support, and community resources for rare diseases that often receive limited public attention.

Potential points of contention

  • Limited fiscal impact vs. symbolic value: Critics may question whether symbolic resolutions warrant legislative time when no funding or concrete programs are attached
  • Precedent concerns: Approval could lead to numerous similar requests for awareness days, potentially diluting the significance of state recognitions
  • Focus on specific diseases: Some may argue the state should address rare diseases comprehensively rather than designating individual awareness days for select conditions

Compiled from official sources — confirm details with the bill’s official record.

Sign in to ask a question.