Bill
SB 146
Connecticut bill would ban selling consumers' genetic information without consent, protecting DNA data from commercial exploitation by testing companies and third parties.
SB 146 would restrict or prohibit the sale of consumers' genetic information without explicit consent. The bill aims to protect individuals' DNA data from being commercialized by genetic testing companies, ancestry services, or other entities without authorization. This represents Connecticut's attempt to establish state-level privacy protections for one of the most sensitive forms of personal health information.
Genetic information is uniquely permanent and can reveal not just an individual's health risks but also information about biological relatives who never consented to testing. As direct-to-consumer genetic testing grows exponentially, companies have significant financial incentives to sell this data to pharmaceutical companies, insurers, and researchers. Without explicit protections, consumers may unknowingly have their genetic profiles monetized or used in ways they don't understand or approve of.
Compiled from official sources — confirm details with the bill’s official record.
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