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SB 715

An Act amending the act of July 7, 2017 (P.L.285, No.14), known as the Rare Disease Advisory Council Act, further providing for expiration.

2025-2026 Regular Session Introduced by Lisa Baker and 14 co-sponsors

Pennsylvania bill extends the Rare Disease Advisory Council's operational authority by removing its sunset expiration date, allowing continued policy guidance and patient advocacy coordination.

Laid on the table (Pursuant to House Rule 71)
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Bill Summary · SB 715

Legislative bill overview

SB 715 amends Pennsylvania's Rare Disease Advisory Council Act by extending the expiration date of the council. The original 2017 law established an advisory body to provide recommendations on rare disease policy, and this bill prevents that council from terminating by pushing back its sunset provision.

Why is this important

The Rare Disease Advisory Council serves patients, medical professionals, and policymakers by coordinating research and treatment strategies for conditions affecting relatively small populations. Without extension, the council's dissolution could interrupt advocacy efforts and policy guidance for individuals with rare genetic, infectious, and other uncommon diseases.

Potential points of contention

  • Fiscal impact unclear: The bill text doesn't specify whether extending the council requires additional state funding or if it operates within existing appropriations
  • Sunset provision replacement undefined: The amended expiration date isn't specified in this summary, raising questions about whether this is a permanent fix or another temporary extension
  • Limited legislative activity: The bill's repeated tabling suggests either procedural delays or potential lack of consensus, despite bipartisan sponsorship

Compiled from official sources — confirm details with the bill’s official record.

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