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Bill

HB 4026

$ALS FOUNDATION

104th Regular Session Introduced by Kevin Olickal and 1 co-sponsor

HB 4026 establishes an Illinois ALS Foundation to fund research, treatment, and support services for amyotrophic lateral sclerosis patients and families.

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Bill Summary · HB 4026

Legislative bill overview

HB 4026 proposes to establish a foundation or funding mechanism dedicated to ALS (amyotrophic lateral sclerosis) research, treatment, and support services in Illinois. The bill is currently in the early stages of the legislative process, having been referred to the Rules Committee after its first reading.

Why is this important

ALS is a progressive neurodegenerative disease with no cure and high mortality rates, creating significant burdens on patients and families. Dedicating state-level funding and organizational infrastructure to ALS could expand research opportunities, improve access to treatments, and strengthen support services for affected individuals in Illinois.

Potential points of contention

  • Fiscal impact and funding source: The bill's cost and whether funding comes from new appropriations or reallocation of existing budgets remains unclear without the bill text
  • Foundation governance and oversight: Questions about how the foundation would be governed, who controls funding allocation, and accountability mechanisms for disbursement
  • Disease-specific vs. broad approach: Debate over whether establishing disease-specific foundations is the most efficient use of state resources versus broader research funding mechanisms

Compiled from official sources — confirm details with the bill’s official record.

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