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HR 15

A RESOLUTION recognizing May 2026 as Amyotrophic Lateral Sclerosis Awareness Month.

2026 Regular Session Introduced by Jason Nemes

Declares May 2026 in Kentucky as ALS Awareness Month to raise public awareness and support education, research, and outreach efforts.

adopted by voice vote
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Bill Summary · HR 15

Summary: HR 15 (2026RS) – Recognition of May 2026 as Amyotrophic Lateral Sclerosis Awareness Month

Purpose and Intent

  • Declares May 2026 as Amyotrophic Lateral Sclerosis (ALS) Awareness Month in the Commonwealth of Kentucky.
  • Aims to increase public awareness of ALS, acknowledge its impact on individuals and families, and support efforts to eradicate the disease.

Key Provisions

  • Section 1: Official recognition
    • The Kentucky House of Representatives recognizes May 2026 as ALS Awareness Month.
  • Section 2: Administrative action
    • The Clerk of the House is directed to transmit a copy of the resolution to Representative Jason Nemes.
  • Preamble statements (informational, not enforceable provisions)
    • ALS is described as a progressive fatal neurodegenerative disease that weakens the ability to walk, speak, eat, and breathe.
    • Provides general statistics and context:
    • ALS diagnosis and mortality occur at notable frequencies (e.g., a new ALS diagnosis roughly every 90 minutes globally, ongoing fatalities from ALS).
    • Average life expectancy after diagnosis is about 2–5 years.
    • Military veterans are at higher risk for developing ALS and dying from it than non-veterans.
    • Emphasizes the importance of access to new therapies, durable medical equipment, and communication technologies.
    • Highlights the role of clinical trials in advancing treatments and assistive technologies.
    • Notes the ALS Association as a major funder of research (over $154 million committed to more than 550 projects in the U.S. and internationally) and its mission to accelerate discovery toward a livable disease and eventual cure.
    • Positions ALS Awareness Month as an opportunity to raise awareness, acknowledge impact, and support research.

Who and What Is Affected

  • Geographic scope: The resolution applies to the Commonwealth of Kentucky.
  • Stakeholders highlighted (informational): individuals living with ALS and their families, veterans, researchers, healthcare providers, trial participants, and advocacy organizations such as the ALS Association.
  • No new regulatory or funding authorities are created; the resolution is ceremonial and symbolic in nature.

Procedural and Timeline Aspects

  • Introduction: January 7, 2026.
  • Committee action: Referred to the Committee on Committees (House) and subsequently moved.
  • Floor action: April 15, 2026 — adopted by voice vote.
  • Effective date: Since this is a concurrent resolution, it takes effect upon adoption by the House (as a ceremonial designation) and does not generate new laws or enforceable regulations.
  • Sponsors: Primary sponsor is Representative Jason Nemes (co-sponsor on record).

Practical Impact

  • No legal duties or funding allocations are attached to the resolution.
  • The resolution serves to officially acknowledge and publicize ALS Awareness Month, potentially fostering public education, community outreach, and institutional support for ALS-related activities.
  • May serve as a platform for legislators, advocates, and medical organizations to promote awareness campaigns, fundraisers, and information dissemination during ALS Awareness Month.

Compiled from official sources — confirm details with the bill’s official record.

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