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HB 5327

West Virginia ALS Care Services Act

2026 Regular Session Introduced by Evan Worrell and 1 co-sponsor

West Virginia Senate passes ALS Care Services Act establishing state support services for residents with amyotrophic lateral sclerosis and their families.

Chapter 188, Acts, Regular Session, 2026
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Bill Summary · HB 5327

Legislative bill overview

HB 5327, the West Virginia ALS Care Services Act, establishes or expands state support and services for individuals diagnosed with amyotrophic lateral sclerosis (ALS) and their families. The bill has advanced through the Senate and been communicated back to the House for consideration, indicating bipartisan sponsorship from representatives Young and Worrell.

Why is this important

ALS is a rapidly progressive neurodegenerative disease with significant care demands and financial burdens on patients and families. State-level support services can improve access to treatment, equipment, respite care, and palliative services while reducing out-of-pocket costs for West Virginia residents facing this terminal illness.

Potential points of contention

  • Funding mechanism: Unclear whether the bill appropriates new state funds or reallocates existing resources, which could affect other programs or require tax discussions
  • Scope of services: The specific services covered (equipment, home care, counseling, etc.) and eligibility criteria are not detailed in available action summaries, leaving questions about comprehensiveness
  • Long-term fiscal impact: Establishing ongoing care service programs creates perpetual budget obligations that may strain state finances or require sustainability mechanisms beyond initial appropriation

Compiled from official sources — confirm details with the bill’s official record.

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