SPECIAL DAY/WEEK/MONTH: Recognizes June 30, 2026, as Arthrogryposis Multiplex Congenita (AMC) Awareness Day at the state capitol

2026 Regular Session Introduced by Laurie Schlegel

Louisiana designates AMC Awareness Day to publicly acknowledge and raise understanding of AMC, without new funding or legal obligations.

Taken by the Clerk of the House and presented to the Secretary of State in accordance with the Rules of the House.

Summary of HR 353 (2026, Louisiana)

Purpose and intent

Recognizes Tuesday, June 30, 2026, as Arthrogryposis Multiplex Congenita (AMC) Awareness Day at the Louisiana state capitol.

Expresses support for individuals affected by AMC and their families.

Key provisions and changes

This is a resolutions measure acknowledging a specific awareness day. It does not create new programs, funding, or statutory requirements beyond the symbolic designation.

The resolution notes AMC as an umbrella term for multiple related conditions characterized by joint stiffness and limited range of motion present at birth.

It provides context on AMC, including:

AMC can affect joints such as hands, feet, hips, knees, elbows, shoulders, wrists, fingers, toes, jaw, and spine.
It occurs in about 1 in 3,000 live births with more than 400 identified subtypes.
Causes are not fully understood but may involve prenatal factors and fetal movement.
Treatments focus on management (stretching, physical therapy, occupational therapy, speech therapy) to maximize independence.

It states that families around the world observe blue on AMC Awareness Day to honor affected individuals and to improve awareness.

Who/what would be affected

The Louisiana General Assembly recognizes AMC Awareness Day, aiming to raise public awareness within the state.

The measure targets the broader community, including healthcare providers, families, and individuals living with AMC, by encouraging recognition of the day at the state capitol.

Procedural and timeline aspects

Introduced as House Resolution 353 by Representative Schlegel (with Co-Sponsor Laur ie Schlegel).

Action history indicates it was read by title on May 27, 2026.

As a resolution, it is a ceremonial designation and does not have the force of law or allocate funds; it serves to publicly acknowledge and support awareness efforts.

Potential impact

Increases visibility of AMC within Louisiana and at the state capitol.

Provides a formal platform for raising awareness, education, and community support without creating new statutory obligations or budgets.

May encourage participation from schools, healthcare providers, and advocacy groups in AMC-related activities on the designated day.