REPRODUCTIVE HEALTH PRIVACY
Illinois requires health information exchanges to segregate abortion data, limit access, and allow opt-out, with fines and private lawsuits for violations.
Illinois requires health information exchanges to segregate abortion data, limit access, and allow opt-out, with fines and private lawsuits for violations.
Date introduced: February 5, 2026
Sponsor: Sen. Celina Villanueva (co-sponsor listed)
Purpose
- Create the Reproductive Health Records Privacy Act to protect the privacy of reproductive health information, specifically abortion care, within health information exchanges (HIEs) and related health data systems.
- Amend the Medical Patient Rights Act to clarify privacy rights and allow segregation of abortion-related information in HIEs.
Key provisions
1) Segregation and privacy requirements for abortion-related data
- By July 1, 2027, health information exchanges must develop capabilities, policies, and procedures to:
- (a) Limit user access privileges to systems containing abortion-related medical information.
- (b) Prevent disclosures or transfers of abortion-related information to persons/entities outside Illinois.
- (c) Segregate abortion-related information from the patient’s general record.
- (d) Automatically disable access to segregated abortion-related data by individuals/entities outside the State.
- Fees charged to providers for compliance must be consistent with 45 CFR 171.302.
- The requirement does not apply to a health care provider themselves (i.e., direct providers are not bound by this subsection).
2) Protections, enforcement, and penalties
- Private right of action: Individuals aggrieved by violations may sue for damages, injunctions, or other relief; reasonable attorney’s fees and costs may be awarded to prevailing plaintiffs.
- Illinois Attorney General enforcement: The AG may bring civil actions for injunctive or equitable relief. Courts may impose civil penalties up to $50,000, with consideration of factors such as good faith effort to comply, patient harm, scope and duration of violations, and the defendant’s financial status.
3) Amendments to the Medical Patient Rights Act (410 ILCS 50/3)
- Reaffirms patient rights to privacy and confidentiality of records.
- Emphasizes the right to information about care, consent, and accounting for charges; allows certain disclosures for treatment, payment, and health care operations in compliance with federal privacy rules.
- Specifically permits and governs the segregation of abortion-related information in health information exchanges, and allows patients to opt out of having their information available on an HIE. Opt-out mechanisms reference applicable sections of:
- Mental Health and Developmental Disabilities Confidentiality Act
- AIDS Confidentiality Act
- Genetic Information Privacy Act
- If a patient opts out, physicians or providers are not liable for release of information by other entities that may possess their data (to the extent allowed by law).
- The Act permits disclosures to identified parties for public health, safety, and welfare and states that patient information may be transmitted to an HIE in accordance with allowed disclosures, with opt-out options.
4) Definitions (selected)
- Abortion: as defined in the Reproductive Health Act (Section 81-10).
- Health information exchange: entity facilitating electronic exchange of health information.
- Patient: person who has received or is receiving medical care in Illinois.
- Health care provider: as defined under HIPAA (45 CFR 160.103).
5) Severability
- Provisions are severable.
Potential impact
Procedural/timeline notes
Compiled from official sources — confirm details with the bill’s official record.
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