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HB 3669

Relating to workforce development.

2025 Regular Session Introduced by Tom Andersen and 3 co-sponsors

Requires universal newborn screening in Illinois for every RUSP condition within 3 years of its addition, with annual DPH progress and funding reports.

In committee upon adjournment.
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Bill Summary · HB 3669

Summary — HB 3669 (NEWBORN SCREENING‑RUSP)

Bill: HB 3669 (Introduced 2/18/2025 by Rep. Kimberly Du Buclet)
Statute affected: Adds Section 4 to the Newborn Metabolic Screening Act (410 ILCS 240)
Companion: SB 1456

Purpose / intent

Require Illinois to expand its newborn screening program to include any condition added to the federal Recommended Uniform Screening Panel (RUSP) and to put a timetable and reporting structure in place to ensure implementation within a defined period. The bill aims to standardize and accelerate adoption of newly recommended newborn screening conditions to improve early detection and treatment.

Key provisions

  • New statutory Section 4 requires the Illinois Department of Public Health (DPH) to adopt rules ensuring that every newborn in Illinois is screened for each condition listed on the RUSP.
  • The screening requirement must be implemented within 3 years after a condition is added to the RUSP (i.e., DPH must adopt rules and operationalize testing within that 3‑year window).
  • DPH must submit an annual report to the Governor and the General Assembly on or before January 1 each year covering:
    • Implementation of current and future testing required under the Section,
    • Timelines for implementing screening for conditions added to the RUSP, and
    • Resources and funding required to implement and sustain the testing.
  • The bill directs DPH to proceed by rulemaking (administrative rules to operationalize the statutory requirement).

Note: The introduced text contains some formatting/wording irregularities in the subsection describing the report contents; the apparent intent is to require reporting on implementation status, timelines, and required resources/funding.

Who is affected

  • Newborns born in Illinois (universal screening requirement).
  • Hospitals, birthing centers, and other facilities that collect newborn screening specimens.
  • Public health and commercial laboratories responsible for newborn screening analysis.
  • Illinois Department of Public Health (rulemaking, oversight, reporting).
  • Health care providers, pediatricians, and follow‑up clinical services (confirmatory testing and treatment).
  • State budget and possibly insurers, due to additional screening costs, confirmatory testing, and follow‑up care.

Timeline / procedural status

  • Filed: March 4, 2025 (introduced 2/18/2025).
  • Committee activity: Referred to Public Health Committee; public hearing 4/14/2025; reported favorably as substituted 4/24/2025.
  • Calendaring: Placed on General State Calendar 5/13/2025.
  • Status note: Rule 19(a) / Re‑referred to Rules Committee (3/21/2025).
  • Annual reporting requirement: DPH report due each year by January 1.

Potential impacts and considerations

  • Public health benefit: Faster statewide adoption of RUSP‑recommended screens could improve early diagnosis and treatment of rare but treatable congenital and metabolic disorders.
  • Operational impact: Labs may need equipment upgrades, new assays, staffing, training, and IT changes to add tests; hospitals need updated procedures for specimen collection and parental notification.
  • Financial implications: Implementation may require new state appropriations or reallocation of funds; the bill anticipates reporting on required funding but does not itself appropriate funds or specify payer responsibilities.
  • Policy considerations: The bill mandates universal screening for RUSP conditions within 3 years but does not address parental consent/opt‑out provisions, follow‑up care funding, or reimbursement mechanisms.

This summary highlights the bill’s core requirements and likely effects; stakeholders (DPH, providers, hospitals, insurers, and advocacy groups) would be central to implementation planning and cost estimates.

Compiled from official sources — confirm details with the bill’s official record.

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