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SB 283

Relating to: public protective services hearing protection assistance. (FE)

2025-2026 Regular Session Introduced by Jesse James and 1 co-sponsor

The bill allocates funds to expand sickle cell care, build transition coordinators for pediatric-to-adult care, and roll out ED care tools statewide.

Published 7-3-2025
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Bill Summary · SB 283

SB 283 — Expand Sickle Cell Disease Programs & Services (Summary)

Status: Passed 1st Reading
Introduced: February 5, 2025
Subject areas: Appropriations; Public health; Diseases & health disorders

Main purpose

SB 283 appropriates state funds to expand clinical, care‑coordination, community, and programmatic supports for people with sickle cell disease (SCD) in the state. The bill responds to updated surveillance showing an estimated ≥7,000 North Carolinians living with SCD and aims to improve clinical care (including emergency department management), transition from pediatric to adult care, and community‑level supports.

Key provisions and funding (FY 2025–26 and FY 2026–27)

Total appropriations:
- FY 2025–26: $1,678,400 (recurring) + $629,873 (nonrecurring)
- FY 2026–27: $1,678,400 (recurring) + $613,250 (nonrecurring)

Major allocations and requirements:
1. Comprehensive Sickle Cell Medical Centers — $1,316,364 (recurring each year), distributed annually to six centers:
- Atrium Health: $203,713
- Duke University Medical Center: $244,999
- East Carolina University School of Medicine: $235,536
- Mission Hospitals: $137,601
- UNC Chapel Hill School of Medicine: $281,031
- Wake Forest Baptist Medical Center: $213,484
- Each center must use $75,000 of its allocation to create one full‑time, permanent Transition Coordinator position (transition readiness assessments and referrals for patients moving from pediatric to adult care).

  1. Community‑based grants — $353,250 (nonrecurring each year) for directed grants to nonprofit/community organizations in underserved counties; grantees must provide comprehensive SCD services and assist local transition efforts.

  2. State Sickle Cell Program operations (Division of Public Health — Women, Infant & Community Wellness Section):

    • $362,036 (recurring each year) to create additional full‑time permanent positions supporting the state SCD program.
    • $16,623 (nonrecurring, FY 2025–26) for office equipment/furniture for those positions.
    • $260,000 (nonrecurring each year) to disseminate an evidence‑based SCD toolkit to emergency departments statewide and support implementation to improve ED care for SCD patients.

Who is affected

  • Individuals living with sickle cell disease (estimated ≥7,000 statewide), particularly youth transitioning to adult care.
  • Six named comprehensive medical centers (listed above).
  • Community‑based nonprofits providing services in areas lacking SCD supports.
  • Division of Public Health (DHHS) staff and state program operations.
  • Emergency departments statewide receiving the SCD toolkit and training support.

Timeline / Implementation

  • Effective date: July 1, 2025.
  • Appropriations cover FY 2025–26 and FY 2026–27 with specified recurring and nonrecurring components. Transition Coordinator positions and state program hires are intended as permanent/recurring investments.

Intended impact and considerations

  • Strengthen clinical care networks and multidisciplinary services for SCD.
  • Improve care quality in emergency settings via toolkit dissemination and implementation support.
  • Address gaps in community services and ease transitions from pediatric to adult care through funded Transition Coordinators and local grants.
  • Implementation will require program staffing, grant administration, and coordination between state program staff, medical centers, and community partners.

Compiled from official sources — confirm details with the bill’s official record.

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