Bill

LR 142

Recognize May 2025 as Myositis Awareness Month in Nebraska

109th Legislature (2025-2026) Introduced by Machaela Cavanaugh

Nebraska designates May 2025 as Myositis Awareness Month to raise awareness among Nebraskans, health professionals, and policymakers; no new funding or programs.

Adopted

WeVote Research Nonpartisan

Bill Summary · LR 142

Summary: Legislative Resolution LR 142 – Myositis Awareness Month (Nebraska)

Purpose and Intent

LR 142 is a nonbinding legislative resolution recognizing May 2025 as Myositis Awareness Month in Nebraska.
The resolution expresses support for all individuals affected by myositis, a group of rare, inflammatory muscle diseases.

Key Provisions

Recognizes May 2025 as Myositis Awareness Month in Nebraska, aligning with a nationwide observance organized by The Myositis Association.
States Nebraska residents are among those affected by myositis and other rare diseases.
Emphasizes the need for heightened awareness, knowledge, and understanding of myositis among the public, healthcare providers, and policymakers.
Acknowledges that myositis is often difficult to diagnose, with delayed treatment and challenges finding qualified healthcare providers.
Highlights that research is needed to identify causes and treatments, and notes that people with myositis may experience reduced quality of life and shortened life expectancy.
Addresses health disparities, noting that women and people of color with myositis face particularly pronounced disparities.
Declares support for all people affected by myositis and the goals of the Myositis Association, a leading international patient advocacy organization focused on patient services, education, research, and public awareness.

Note: As a resolution, the bill does not create new programs, funding, or statutory requirements; its impact is ceremonial and informational, aimed at raising awareness and solidarity.

Affected Parties

Nebraskans living with myositis and other rare inflammatory muscle diseases.
Healthcare providers and the broader Nebraska health community (for awareness and education purposes).
The general public, through heightened awareness and understanding of myositis.

Background and Context

Myositis encompasses idiopathic inflammatory myopathies that cause chronic muscle inflammation and weakness, pain, fatigue, swallowing difficulties, and can include interstitial lung disease.
The Myositis Association is described as the leading international patient advocacy organization for this condition.

Procedural Timeline

Introduced: April 30, 2025 (LR 142, 109th Legislature, First Session).
Laid over: April 30, 2025 (initial consideration).
Adopted: May 7, 2025.
Signature: President/Speaker signed on or around May 7, 2025, finalizing adoption.

Potential Impact

Elevates visibility of myositis within Nebraska.
Encourages public education and awareness among Nebraskans and health professionals.
May support future policy discussions or funding decisions related to rare diseases and neuromuscular health, though LR 142 itself does not authorize spending or new programs.

Compiled from official sources — confirm details with the bill’s official record.