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LR 166

Recognize May 2025 as Amyotrophic Lateral Sclerosis Awareness Month

109th Legislature (2025-2026) Introduced by Carolyn Bosn

Designates May 2025 as ALS Awareness Month in Nebraska and urges Nebraskans to support ALS research and those affected; a symbolic, non-binding resolution.

Adopted
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Bill Summary · LR 166

Summary of LR 166 — Recognize May 2025 as Amyotrophic Lateral Sclerosis (ALS) Awareness Month

Overview

LR 166 is a Nebraska Legislative Resolution, introduced during the 109th Legislature, First Session, and adopted in May 2025. As a resolution, it is ceremonial in nature and does not enact new laws or authorize expenditures. The bill recognizes May 2025 as ALS Awareness Month and encourages Nebraskans to support ALS research and funding, while acknowledging those affected by the disease.

Purpose and Intent

  • Acknowledges the progressive, fatal neurodegenerative nature of ALS (also known as Lou Gehrig’s disease) and the impact it has on individuals and families.
  • Highlights the importance of access to new therapies, durable medical equipment, communication technologies, and participation in clinical trials.
  • Seeks to raise public awareness about ALS and to encourage support for research and funding dedicated to combating the disease.

Key Provisions

  1. The Legislature recognizes May 2025 as ALS Awareness Month.
  2. The Legislature encourages Nebraskans to join in supporting ALS research and funding and to recognize and support those affected by ALS.

Background and Rationale (As Presented in the Resolution)

  • ALS is described as a disease in which brain-muscle communication deteriorates, gradually affecting mobility, speech, eating, and breathing.
  • Statistics cited include thousands of new cases annually and an approximate diagnosis-to-survival window of two to five years, underscoring the urgency for research and therapies.
  • The text notes the role of clinical trials in evaluating new treatments and improving quality of life and assistive technologies.
  • ALS Awareness Month is framed as an opportunity to boost public awareness of the disease’s impact and to support research efforts.

Procedural Timeline and Status

  • Introduced: May 12, 2025
  • Laid over: May 12, 2025
  • Adopted and signed: May 19, 2025
  • Status: Adopted
  • Sponsor: Bosn (primary) with multiple co-sponsors listed

Affected Parties

  • Individuals living with ALS and their families and caregivers
  • Medical researchers and clinicians
  • Patients and advocacy groups
  • General Nebraskan public and lawmakers

Practical Implications

  • Non-binding and symbolic: as a resolution, it does not create legal duties or funding.
  • Aims to elevate awareness, honor those affected, and potentially catalyze ongoing public and private support for ALS research and related services.
  • May influence public commemoration, education, and community engagement around ALS in Nebraska.

Bottom Line

LR 166 formally designates May 2025 as ALS Awareness Month in Nebraska and encourages continued support for ALS research and those impacted by the disease. It reflects a cross-legislator commitment to raising awareness and rallying public and philanthropic support, without imposing new policy requirements or funding.

Compiled from official sources — confirm details with the bill’s official record.

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