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LR 182

Recognize May 2025 as ALS Awareness Month

109th Legislature (2025-2026) Introduced by Brad von Gillern

Nebraska designates May 2025 as ALS Awareness Month to raise awareness, honor those affected, and urge support for ALS research, therapies, and assistive tech.

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Bill Summary · LR 182

Summary of LR 182 — Recognize May 2025 as ALS Awareness Month

Overview

  • Type: Non-binding resolution
  • Bill Number: LR 182
  • Title: Recognize May 2025 as ALS Awareness Month
  • Legislature: Nebraska, One Hundred Ninth Legislature, First Session
  • Status: Adopted
  • Introduced: May 13, 2025
  • Final Action: Adopted and signed by the President/Speaker on May 20, 2025
  • Primary Sponsor: von Gillern
  • Other Sponsors: Brandt, Cavanaugh, Clements, Clouse, DeBoer, DeKay, Dorn, Guereca, Hallstrom, Hardin, Holdcroft, Kauth, Murman, Sanders, Sorrentino, Storer, Storm, Wordekemper (and others listed in the sponsor roster)

Purpose and Intent

  • The primary goal is to designate May 2025 as ALS Awareness Month in Nebraska.
  • The resolution aims to increase public awareness of Amyotrophic Lateral Sclerosis (ALS), acknowledge its impact on patients and families, advocate for continued and expanded ALS research, and encourage support for therapies and assistive technologies.
  • The measure also honors individuals affected by ALS and highlights the importance of clinical trials in developing new treatments and technologies.

Key Provisions

  • Section 1: Recognizes May 2025 as ALS Awareness Month in Nebraska.
  • Section 2: Urges Nebraskans to support ALS research and funding and to recognize those affected by the disease.
  • Preamble (Whereas clauses) provides context:
    • ALS is a progressive, fatal neurodegenerative disease that weakens muscles and impairs basic activities.
    • The disease has significant mortality and morbidity, with ongoing need for access to therapies, durable medical equipment, and communication technologies.
    • Emphasizes the role of clinical trials in evaluating new treatments and improving quality of life.
    • Pays tribute to Joe Erhardt of Grand Rapids, Michigan, highlighting his battle with ALS as an inspirational example of resilience and advocacy.
    • Frames ALS Awareness Month as an opportunity to raise awareness, acknowledge the impact of the disease, and support research to eradicate ALS.

Affected Parties

  • Individuals living with ALS and their families and caregivers.
  • Researchers, clinicians, and institutions involved in ALS research and clinical trials.
  • Nebraskans generally, who are encouraged to participate in awareness, fundraising, and support efforts.

Procedural and Timeline Details

  • Introduction: May 13, 2025
  • Laid over: May 13, 2025
  • Adopted: May 20, 2025
  • Signed by: President/Speaker on May 20, 2025
  • Type of measure: Resolution (non-binding, symbolic)
  • No new state programs or funding authorities are created by this resolution; it serves as a formal statement of recognition and encouragement.

Potential Impact

  • Raises public awareness about ALS within Nebraska.
  • Provides a formal platform for advocacy around ALS research funding and access to therapies and assistive technologies.
  • Can be used by ALS organizations and advocates to mobilize community events, education, and fundraising during May.
  • Serves as a commemorative and educational tool, without imposing regulatory or fiscal changes.

Notes

  • The bill’s content emphasizes the human impact of ALS, including personal stories and the ongoing need for research and supportive care.
  • While commemorative, the resolution aligns Nebraska with broader awareness efforts for ALS and related research initiatives.

Compiled from official sources — confirm details with the bill’s official record.

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