Bill
HR 8079
Designates Rare Disease Day and encourages awareness, education, and participation to support individuals with rare diseases and their families.
HR 8079 — Rare Disease Day (Resolution) — Summary
Overview
- Bill number and title: HR 8079, Rare Disease Day
- Type: Resolution (ceremonial)
- Purpose: To recognize and designate Rare Disease Day and to express support for awareness and understanding of rare diseases.
- Introduced: April 15, 2025
- Current status: Adopted by Publication
- Classification: Resolution (no new law or funding)
What this bill aims to do
- Official recognition: The resolution designates Rare Disease Day and provides formal acknowledgment of the challenges faced by individuals with rare diseases and their families.
- Awareness and education: It supports raising public awareness about rare diseases and the needs of affected individuals, families, and communities.
- Encouragement of participation: It invites stakeholders, including the public, health professionals, patient advocacy groups, and educational and community organizations, to participate in observance activities and related education efforts.
- Non-fiscal/ceremonial nature: As a resolution, it expresses the legislative body’s stance and does not create new laws or authorize spending.
Key provisions (typical elements for a resolution of this type)
- Designation: Proclaims Rare Disease Day to be observed or recognized in connection with the resolution.
- Observance and activities: Encourages appropriate observances, educational campaigns, and outreach to raise awareness about rare diseases.
- Acknowledgment: Pays tribute to individuals living with rare diseases and to families and advocates who support them.
- Non-binding language: Conveys the sentiments and support of the legislature without imposing legal obligations or financial mandates.
Who or what is affected
- Individuals with rare diseases and their families and caregivers
- Patient advocacy organizations and allied health and nonprofit groups
- General public, educators, healthcare professionals, and researchers
- Government agencies and institutions involved in health education and public awareness (insofar as they engage in awareness activities encouraged by the resolution)
Procedural and timeline notes
- 1st Reading: April 15, 2025 (Original Filed Version)
- 2nd Reading: April 23, 2025
- Committee/Calendar actions: Placed on Ceremonial Resolutions Calendar – Publication only (April 23, 2025)
- Adoption: Adopted by Publication (April 23, 2025)
- Effect: The adoption is ceremonial; the act serves as formal recognition and does not create enforceable law or require funding.
Bottom line
HR 8079 is a ceremonial resolution recognizing Rare Disease Day, intended to raise awareness and encourage community engagement around rare diseases. It has completed its readings and was adopted/published on April 23, 2025.
Compiled from official sources — confirm details with the bill’s official record.
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