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HR 468

PBC AWARENESS MONTH

104th Regular Session Introduced by Sonya Harper

Declares Illinois PBC Awareness Month to boost diagnosis, education, and care; also recognizes the 1911 Rand McNally map of White County, GA as a historic resource.

Resolution Adopted
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Bill Summary · HR 468

Summary — H.R. 468 (House Resolution) — “PBC Awareness Month” / Recognition of 1911 Rand McNally Map of White County, GA

Status: Resolution Adopted
Introduced: January 15, 2025
Classification: House resolution

Purpose / Intent

H.R. 468 is a non‑binding resolution combining two distinct commemorative actions:
1. Recognizes the historical significance of the 1911 Rand McNally map of White County, Georgia, and encourages preservation, study, and public education about the county’s historical geography and lost communities.
2. Declares September 2025 as Primary Biliary Cholangitis (PBC) Awareness Month in Illinois, promotes public awareness of PBC, and supports patient education, earlier diagnosis, research, and community resources.

Key provisions and actions

  • Map recognition (White County, GA)

    • Formally recognizes the 1911 Rand McNally map as a valuable historical record of early‑20th century White County geography, transportation, and settlements.
    • Specifically calls out numerous communities and landmarks shown on the map (e.g., Kinsey, Leo, Loudsville, Nacoochee, Parks, Pink, Asbestos, Benefit, Church, Cleveland, Teshatee, Pleasant Retreat, etc.) and highlights their historical roles.
    • Encourages efforts to document, study, and educate the public about the county’s evolving geography and cultural legacy.
    • Directs the Clerk of the House to make appropriate copies of the resolution available for distribution to the public and press.

  • PBC Awareness (Illinois)

    • Notes epidemiological context: cites National Institutes of Health and advocacy group estimates (text references ~105,500 and ~130,000 Americans living with related bile‑duct autoimmune disease/PBC, with ~4,000 Illinois residents affected). Observes that ~90% of PBC cases occur in women, typically ages 30–60.
    • Emphasizes symptom burden (fatigue, pruritus/itching) and the importance of early diagnosis, specialist referral, and access to knowledgeable care.
    • Recognizes Friends of the PBC Foundation and international advocacy groups, and adopts the 2025 awareness campaign theme “You Are Not Alone.”
    • Declares September 2025 as Primary Biliary Cholangitis Awareness Month in Illinois, notes International PBC Day on Sept 14, 2025, and references the U.S. PBC Patient Conference in Chicago Sept 19–21, 2025.
    • Calls on Illinois residents, health professionals, leaders, and institutions to support affected patients, education, research, and the development of a public health registry.

Who is affected / impact

  • Cultural heritage stakeholders: White County residents, historians, preservationists, educators, and local museums benefit from increased recognition and encouragement to preserve historic maps and community histories.
  • Health stakeholders: Individuals living with PBC (nationally estimated in the tens of thousands; ~4,000 in Illinois per the resolution), predominantly women aged 30–60; clinicians, patient advocates, researchers, and public health agencies may see increased outreach, awareness, and calls for improved diagnosis, care pathways, and registries.
  • The resolution is declarative (symbolic) rather than regulatory; it encourages action, awareness, and distribution of informational materials.

Procedural / timeline notes

  • Introduced Jan 15, 2025; referred to House Committee on Education and Workforce. Administrative steps recorded through 2025 (filings, “Read and Adopted” March 3; reassignment and committee referrals in Sept–Oct).
  • Recommended Be Adopted by Public Health Committee Oct 28, 2025; placed on Calendar — Resolution Adopted Oct 28, 2025.
  • Sponsors and cosponsors are listed in the bill file (multiple members noted as primary and cosponsors).

Compiled from official sources — confirm details with the bill’s official record.

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