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Bill

HB 1580

Parkinson's disease registry.

2025 Regular Session Introduced by Sue Errington and 1 co-sponsor

Indiana establishes a Parkinson's disease registry to track patient data statewide for public health monitoring and research purposes.

First reading: referred to Committee on Public Health
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Bill Summary · HB 1580

Legislative bill overview

HB 1580 establishes a Parkinson's disease registry in Indiana to collect and maintain data on individuals diagnosed with Parkinson's disease. The registry would serve as a centralized database to track prevalence, demographics, and disease characteristics across the state. This enables public health monitoring and supports research efforts focused on understanding and addressing Parkinson's disease in Indiana's population.

Why is this important

Parkinson's disease affects approximately 60,000 Americans, with prevalence expected to increase as the population ages. A state registry provides epidemiological data that can identify geographic clusters, demographic patterns, and health disparities—information critical for allocating resources, planning services, and informing research priorities. This infrastructure also facilitates patient recruitment for clinical trials and helps policymakers understand the burden of disease on Indiana's healthcare system.

Potential points of contention

  • Privacy and data security concerns: Medical registries containing sensitive health information raise questions about how data will be protected, who can access it, and what safeguards exist against breaches or unauthorized use.
  • Participation requirements and burden: Unclear whether registry participation is voluntary or mandatory, and whether healthcare providers face administrative or reporting burdens that could delay diagnosis or care.
  • Funding and sustainability: No apparent discussion of implementation costs, ongoing maintenance, staffing, or long-term funding mechanisms to keep the registry operational.

Compiled from official sources — confirm details with the bill’s official record.

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