“Para enmendar los Artículos 2 y 3 de la Ley Núm. 84 de 2 de julio de 1987, según enmendada, a los fines de establecer una nueva condición dentro de las incluidas en el Programa para la Detección, Diagnóstico y Tratamiento de Enfermedades Hereditarias; y para otros fines relacionados.”

2025-2028 Session

Proposes adding a new hereditary condition to the detection, diagnosis, and treatment program, expanding services for affected individuals.

Comisión no recomienda aprobación de la medida

Overview

Bill Number: PS 282

Title: Para enmendar los Artículos 2 y 3 de la Ley Núm. 84 de 2 de julio de 1987, según enmendada, a los fines de establecer una nueva condición dentro de las incluidas en el Programa para la Detección, Diagnóstico y Tratamiento de Enfermedades Hereditarias; y para otros fines relacionados.

Status: Comisión no recomienda aprobación de la medida

Introducción: January 27, 2025

Purpose and Intent

PS 282 proposes to amend Articles 2 y 3 of Law No. 84 (1987, as amended) to add una nueva condición within the Program for the Detection, Diagnosis and Treatment of Hereditary Diseases. The core aim is to expand the program’s scope by including an additional hereditary condition, thereby extending access to detection, diagnosis, and treatment services to more individuals. The bill also references related or ancillary purposes, consistent with updating the statutory framework governing the program.

Key Provisions (What the bill would change)

Amendment of Law: Modify Articles 2 and 3 of Law No. 84 to incorporate a new condition into the program’s coverage.

New Condition in Program: Establish the criteria by which the new hereditary condition would be included and managed within the program.

Implementation Details (to be specified): While the high-level goal is to add the condition, the exact definitions, eligibility criteria, funding mechanisms, service benefits, and administrative responsibilities would be laid out in the bill’s text and accompanying provisions.

Note: The specific hereditary condition and the detailed operational provisions are not provided in the summary you shared. The full text would specify the condition, criteria, and implementing steps.

Affected Parties

Individuals with hereditary diseases: Potential beneficiaries who would gain access to detection, diagnosis, and treatment services for the newly added condition.

Department/Agency administering the program: Responsible for implementing the expanded scope, managing funding, and oversight.

Healthcare providers and facilities: Likely to see changes in eligibility for services and reporting requirements.

Payors/Insurers (as applicable): May be affected by any changes to covered services or reimbursement rules.

Procedural and Timeline Highlights

January 27, 2025: Bill radicado (introduced) and appears in Primera Lectura en el Senado; referred to committees.

May 23, 2025: Comisión no recomienda aprobación de la medida (the committee did not recommend approving the bill).

The current status indicates the bill faces procedural hurdles in the Senate. For passage, it would typically require approval by the full Senate and coordination with the House, plus any reconsideration or amendments by committees.

Potential Impact and Next Steps

If enacted, the bill would formally add a targeted hereditary condition to the program, potentially expanding access to essential services for affected individuals.

Fiscal and administrative implications would depend on the chosen condition, implementation timing, and funding provisions.

Given the committee’s unfavorable recommendation, the bill would need renewed support or legislative changes to advance.

Bill