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SR 181

Pace Day; recognize February 26, 2025

2025-2026 Regular Session Introduced by John Kennedy and 2 co-sponsors

SR 181 designates October 25-31, 2025, as Epidermolysis Bullosa Awareness Week in Pennsylvania, boosting understanding and support for those affected by this rare skin disorder.

Senate Read and Adopted
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Bill Summary · SR 181

Summary of SR 181 - Epidermolysis Bullosa Awareness Week Resolution

Purpose and Intent

Senate Resolution 181 (SR 181) aims to designate the week of October 25 through 31, 2025, as "Epidermolysis Bullosa Awareness Week" in the state of Pennsylvania. The resolution seeks to raise awareness about Epidermolysis Bullosa (EB), a rare genetic skin disorder that causes fragile skin and blisters, often leading to severe complications and a significant impact on the quality of life for those affected.

Key Provisions

  • Designation of Awareness Week: The resolution formally establishes the last week of October 2025 as a time to promote understanding and awareness of Epidermolysis Bullosa.
  • Awareness Campaign: The resolution encourages educational initiatives and activities throughout the designated week to inform the public about EB, its challenges, and the needs of those living with the condition.

Affected Parties

  • Individuals with EB: The primary beneficiaries of this resolution are individuals diagnosed with Epidermolysis Bullosa and their families, who may gain increased visibility and support through awareness efforts.
  • Healthcare Providers: Medical professionals may also benefit from enhanced awareness, leading to better understanding and treatment approaches for patients with EB.
  • Advocacy Groups: Organizations focused on rare diseases and skin conditions may leverage this resolution to further their missions and outreach efforts.

Legislative Process and Timeline

  • Introduced: SR 181 was introduced on October 24, 2025.
  • Current Status: The resolution has been referred to the Rules & Executive Nominations Committee for further consideration.

Sponsors

The resolution is sponsored by:
- Primary Sponsor: Judy Ward
- Cosponsors: Wayne Fontana, Scott Martin, Kristin Phillips-Hill, Rosemary Brown, Vincent Hughes, Lynda Schlegel Culver, Art Haywood, and Patrick Stefano.

Conclusion

SR 181 represents a significant step towards increasing awareness of Epidermolysis Bullosa in Pennsylvania. By designating a specific week for awareness, the resolution aims to foster understanding and support for individuals affected by this challenging condition, ultimately contributing to improved public knowledge and advocacy efforts.

Compiled from official sources — confirm details with the bill’s official record.

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