Summary of HR 1189 - National Plan for Epilepsy Act

Overview

The National Plan for Epilepsy Act (HR 1189) was introduced in the House of Representatives on February 11, 2025. This bill aims to establish a comprehensive national strategy to improve the quality of life for individuals living with epilepsy and to enhance research, education, and awareness regarding the condition.

Purpose and Intent

The primary intent of HR 1189 is to create a coordinated national approach to address the challenges faced by people with epilepsy. The bill seeks to:
- Increase funding for epilepsy research.
- Improve access to care and treatment options.
- Enhance public awareness and education about epilepsy.
- Foster collaboration among federal agencies, healthcare providers, and advocacy organizations.

Key Provisions

While the detailed provisions of the bill are not specified in the provided information, typical elements of such legislation may include:
- Establishment of a National Epilepsy Strategy: A framework to guide research and public health initiatives.
- Funding Allocations: Designation of federal funds to support epilepsy research and community programs.
- Public Awareness Campaigns: Initiatives aimed at educating the public about epilepsy, reducing stigma, and promoting understanding of the condition.
- Collaboration with Stakeholders: Engagement with healthcare providers, researchers, and advocacy groups to ensure a comprehensive approach to epilepsy care.

Affected Parties

The bill would primarily impact:
- Individuals living with epilepsy and their families.
- Healthcare providers and researchers involved in epilepsy care and studies.
- Advocacy organizations focused on epilepsy awareness and support.
- Federal and state health agencies responsible for implementing the national strategy.

Legislative Process

• Introduced: February 11, 2025
• Referred to Committee: The bill has been referred to the House Committee on Energy and Commerce for further consideration.

Sponsors

HR 1189 has a diverse group of sponsors, indicating broad support across party lines. Key sponsors include:
- Jim Costa (primary sponsor)
- Michael Lawler
- Steny H. Hoyer
- Eleanor Holmes Norton
- Seth Moulton
- Sean Casten
- Brian K. Fitzpatrick
- Ted Lieu
- Debbie Dingell
- Gregory F. Murphy
- Mike Quigley
- Nydia M. Velázquez
- John R. Moolenaar
- Shri Thanedar
- Gus M. Bilirakis
- Steve Cohen
- Rashida Tlaib
- Laura Gillen
- Henry Cuellar

Related Legislation

HR 1189 has a companion bill in the Senate, S 494, which may parallel its objectives and provisions.

Conclusion

The National Plan for Epilepsy Act represents a significant step towards addressing the needs of the epilepsy community through enhanced research, education, and coordinated care. As the bill progresses through the legislative process, it has the potential to bring about meaningful changes for individuals affected by epilepsy across the nation.