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J 945

Memorializing Governor Kathy Hochul to proclaim July 2025 as MECP2 Duplication Syndrome Awareness Month in the State of New York

2025 Regular Session Introduced by Joe Addabbo and 62 co-sponsors

Bill J 945 designates July 2025 as MECP2 Duplication Syndrome Awareness Month in New York, promoting education and support for affected individuals and families.

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Bill Summary · J 945

Summary of Bill J 945

Bill Overview

  • Bill Number: J 945
  • Title: Memorializing Governor Kathy Hochul to proclaim July 2025 as MECP2 Duplication Syndrome Awareness Month in the State of New York
  • Status: Adopted
  • Introduced: May 06, 2025
  • Classification: Resolution

Purpose and Intent

The primary purpose of Bill J 945 is to raise awareness about MECP2 Duplication Syndrome, a rare genetic disorder that primarily affects males and can lead to severe developmental delays and other health issues. By designating July 2025 as MECP2 Duplication Syndrome Awareness Month, the bill aims to educate the public, promote understanding of the condition, and support families affected by it.

Key Provisions

  • The resolution calls for the official proclamation by Governor Kathy Hochul to recognize July 2025 as MECP2 Duplication Syndrome Awareness Month.
  • It encourages state agencies, organizations, and the general public to participate in awareness activities throughout the month.

Impact

  • Affected Groups: The resolution is expected to impact individuals diagnosed with MECP2 Duplication Syndrome, their families, healthcare providers, and advocacy organizations.
  • Awareness and Education: By promoting awareness, the bill seeks to foster a greater understanding of the syndrome, potentially leading to improved support and resources for affected families.

Legislative Actions

  • May 06, 2025: The bill was introduced and referred to the Finance Committee.
  • May 13, 2025: The bill was reported to the calendar for consideration and subsequently adopted on the same day.

Conclusion

Bill J 945 serves as a significant step towards increasing awareness of MECP2 Duplication Syndrome in New York. By designating a specific month for awareness, the resolution aims to enhance public knowledge and support for those impacted by this condition. The swift legislative process reflects a commitment to addressing the needs of affected individuals and their families.

Compiled from official sources — confirm details with the bill’s official record.

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