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J 100

Memorializing Governor Kathy Hochul to proclaim February 28, 2025, as Rare Disease Day in the State of New York

2025 Regular Session Introduced by Joe Addabbo and 62 co-sponsors

Bill J 100 designates February 28, 2025, as Rare Disease Day in New York, raising awareness and support for individuals and families affected by rare diseases.

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Bill Summary · J 100

Summary of Bill J 100

Bill Overview

  • Bill Number: J 100
  • Title: Memorializing Governor Kathy Hochul to proclaim February 28, 2025, as Rare Disease Day in the State of New York
  • Status: Adopted
  • Introduced: January 09, 2025
  • Classification: Resolution

Purpose and Intent

The primary purpose of Bill J 100 is to formally recognize February 28, 2025, as Rare Disease Day in the State of New York. This resolution aims to raise awareness about rare diseases, which affect a significant number of individuals and families across the state and the nation. By designating a specific day for this cause, the bill seeks to promote education, advocacy, and support for those impacted by rare diseases.

Key Provisions

  • Proclamation Request: The bill memorializes the Governor of New York to officially proclaim February 28, 2025, as Rare Disease Day.
  • Awareness Campaign: The resolution encourages activities and events that will highlight the challenges faced by individuals with rare diseases and the importance of research and support.

Impact

  • Affected Groups: The resolution primarily impacts individuals living with rare diseases, their families, healthcare providers, and advocacy organizations. It serves to amplify their voices and concerns within the public sphere.
  • Community Engagement: By establishing Rare Disease Day, the bill fosters community engagement and encourages public discussions about rare diseases, potentially leading to increased funding for research and better healthcare policies.

Legislative Actions

  • January 09, 2025: The bill was introduced and referred to the Finance Committee.
  • January 14, 2025: The bill was reported to the calendar for consideration and subsequently adopted on the same day.

Conclusion

Bill J 100 serves as an important step in recognizing the challenges faced by those with rare diseases in New York. By designating a specific day for awareness, the resolution aims to foster a greater understanding and support for affected individuals and their families, while also promoting necessary research and advocacy efforts.

Compiled from official sources — confirm details with the bill’s official record.

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