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Bill

K 395

Memorializing Governor Kathy Hochul to proclaim April 29, 2025, as Undiagnosed Rare Disease Day in the State of New York

2025 Regular Session Introduced by John Lemondes

Urges the Governor to proclaim April 29, 2025, as Undiagnosed Rare Disease Day in New York; a symbolic, nonbinding effort to raise awareness and support affected families.

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Bill Summary · K 395

K 395 — Memorializing Governor Kathy Hochul to proclaim April 29, 2025, as Undiagnosed Rare Disease Day in the State of New York

Overview

K 395 is a memorializing resolution in the New York State Legislature. Its purpose is to urge the Governor to proclaim April 29, 2025, as Undiagnosed Rare Disease Day within New York. As a resolution, it expresses the Legislature’s formal support and does not establish new laws or funding.

Purpose and Intent

  • Officially request (memorialize) the Governor to issue a proclamation designating April 29, 2025, as Undiagnosed Rare Disease Day in New York.
  • Raise public awareness about undiagnosed rare diseases and the challenges faced by individuals and families affected.
  • Align state recognition with broader rare disease awareness efforts and promote education, outreach, and community engagement.

Key Provisions

  • The Legislature memorializes the Governor to proclaim a statewide Undiagnosed Rare Disease Day on April 29, 2025.
  • Encourages awareness-raising activities, education for the public and healthcare professionals, and collaboration with relevant organizations to highlight the experiences of those with undiagnosed rare conditions.
  • Does not authorize new state programs, funding, or regulatory changes; serves as a symbolic endorsement and call to action.

Who/What Is Affected

  • Undiagnosed individuals and their families, who may benefit from heightened public understanding and visibility.
  • Healthcare professionals, researchers, and patient advocacy groups focused on rare diseases.
  • State government and public institutions may be invited to participate in awareness activities or events tied to the proclamation.
  • The general public in New York, through increased awareness and potential educational initiatives.

Procedural History and Timeline

  • 2025-04-29: Introduced and referred to calendar (two entries of referral to calendar on this date).
  • 2025-04-30: Adopted (two entries indicating passage in the Legislature).
  • Status: ADOPTED. Classification: resolution. The bill is a memorializing resolution, not a law.

Potential Impact

  • Symbolic endorsement by the Legislature of Undiagnosed Rare Disease Day in New York.
  • May catalyze local events, awareness campaigns, and partnerships with patient organizations.
  • No direct fiscal impact or regulatory changes anticipated, given its non-binding, ceremonial nature.

If you’d like, I can compare this bill to similar national or international Undiagnosed Rare Disease Day efforts or provide a quick note on how such proclamations typically influence public awareness campaigns.

Compiled from official sources — confirm details with the bill’s official record.

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